Pondé Milena Pereira, Rousseau Cécile
Bahiana School of Medicine and Public Health, Interdisciplinary Laboratory in Autism Research (LABIRINTO), Salvador, Bahia, Brazil.
J Can Acad Child Adolesc Psychiatry. 2013 May;22(2):131-8.
The purpose of this study was to compare a medical diagnosis of autism spectrum disorder (ASD) with the perceptions of immigrant parents regarding their child's difficulties.
Semistructured interviews were conducted with parents. The children were assessed using the ADOS, and a multiaxial diagnosis was reached using the DSM-IV.
The majority of parents recognized symptoms in their child that were related to autism. Less often, however, parents believed their children had a developmental delay or communication problem rather than an ASD. There were also parents who failed to see any problem at all in their child although the child was, nonetheless, diagnosed as having an ASD.
The failure of immigrant mothers to acknowledge a diagnosis of ASD in their younger children may represent an attempt to preserve hope for their child's future. Mothers of older children may not, however, agree with the psychiatric diagnosis. Community services need to balance the need to convey accurate medical information with the need to protect parents' investment in their children. This may be particularly true for immigrant parents who are living outside their cultural framework.
本研究的目的是比较自闭症谱系障碍（ASD）的医学诊断与移民父母对其子女困难的看法。
对父母进行半结构化访谈。使用《自闭症诊断观察量表》（ADOS）对儿童进行评估，并根据《精神疾病诊断与统计手册》第四版（DSM-IV）得出多轴诊断。
大多数父母认识到孩子身上与自闭症相关的症状。然而，父母较少认为自己的孩子存在发育迟缓或沟通问题，而不是自闭症谱系障碍。也有一些父母尽管孩子被诊断为患有自闭症谱系障碍，但他们根本没有看到孩子有任何问题。
移民母亲未能承认其年幼子女患有自闭症谱系障碍，这可能代表着她们试图为孩子的未来保留希望。然而，年龄较大孩子的母亲可能不同意精神病学诊断。社区服务需要在传达准确医学信息的需求与保护父母对子女投入的需求之间取得平衡。对于生活在其文化框架之外的移民父母来说，情况可能尤其如此。
