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青少年和青年癌症患者:最新进展——心理社会方面。

The adolescent and young adult with cancer: state of the art -- psychosocial aspects.

机构信息

Department of Pediatric Oncology, Santa Marcelina Hospital / TUCCA, Rua Santa Marcelina 181 A, São Paulo, Brazil.

出版信息

Curr Oncol Rep. 2013 Aug;15(4):325-31. doi: 10.1007/s11912-013-0324-6.

DOI:10.1007/s11912-013-0324-6
PMID:23700032
Abstract

Adolescents and young adults with cancer are a distinct subgroup of patients within oncology. From the onset of symptoms until the completion of therapy and beyond, they face physical, psychological, and social challenges that are significantly different from those of adults and children. Survival rates and quality of life outcomes for this population have not improved to the same extent that have for younger and older patients. Improvements in quality of care, overall survival and quality of life for these patients require access to specialized care and participation in clinical trials; assistance with management of disease and treatment effects (especially fertility and body image issues); assessment of psychosocial needs; facilitated transition to off-treatment care; and referral to age-appropriated information and support services. Staff team caring for young patients must be dedicated to working with this age group and should have specialist knowledge and training to support their specific needs.

摘要

癌症青少年和青年患者是肿瘤学中一个独特的亚组患者。从症状出现到治疗完成及以后,他们面临着与成人和儿童显著不同的身体、心理和社会挑战。该人群的生存率和生活质量结果并未像年轻和老年患者那样得到同样程度的改善。要改善这些患者的护理质量、总生存率和生活质量,就需要获得专门的护理并参与临床试验;需要帮助管理疾病和治疗效果(特别是生育和身体形象问题);需要评估社会心理需求;需要为治疗结束后的护理提供便利;并需要转介给适合其年龄的信息和支持服务。照顾年轻患者的医护团队必须致力于为这一年龄组服务,并且应该具有专业知识和培训,以满足他们的特殊需求。

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本文引用的文献

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Adolescent and young adult oncology. Clinical practice guidelines in oncology.青少年和青年肿瘤学。肿瘤学临床实践指南。
J Natl Compr Canc Netw. 2012 Sep;10(9):1112-50. doi: 10.6004/jnccn.2012.0117.
2
End-of-life management in pediatric cancer.儿科癌症的临终关怀管理。
Curr Oncol Rep. 2012 Apr;14(2):191-6. doi: 10.1007/s11912-012-0218-z.
3
Palliative care in adolescents and young adults with cancer.癌症青少年和青年的姑息治疗。
Identifying the informational needs and sources of support of Adolescent and Young Adult (AYA) cancer survivors to inform the development of a digital platform.
识别青少年和青年癌症幸存者的信息需求及支持来源,以为数字平台的开发提供参考。
J Cancer Surviv. 2024 Oct 18. doi: 10.1007/s11764-024-01679-z.
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Rationale of Establishment of Adolescents and Young Adult Multidisciplinary Team (AYA MDT) Tumor Board in Pakistan.巴基斯坦青少年及青年成人多学科团队(AYA MDT)肿瘤病例讨论会的成立理由。
Asian Pac J Cancer Prev. 2024 Apr 7;25(4):1109. doi: 10.31557/APJCP.2024.25.4.1109.
5
Experiences of young adults affected by cancer within an 8-week yoga intervention delivered by videoconference: a qualitative interview study.癌症对年轻人的影响:一项为期 8 周的视频会议瑜伽干预的定性访谈研究。
Ann Med. 2024 Dec;56(1):2309275. doi: 10.1080/07853890.2024.2309275. Epub 2024 Jan 30.
6
Word of mouth from an adolescent with cancer in the convalescence stage to exploring their mental health after treatment.从处于康复阶段的癌症青少年的口碑中,探索他们治疗后的心理健康状况。
Sci Rep. 2024 Jan 16;14(1):1364. doi: 10.1038/s41598-024-51836-8.
7
Posttraumatic growth and illness perception in survivors of adolescent and young adult cancer.青少年和青年癌症幸存者的创伤后成长与疾病认知
Discov Oncol. 2023 Oct 30;14(1):194. doi: 10.1007/s12672-023-00810-3.
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Education, Employment, and Financial Outcomes in Adolescent and Young Adult Cancer Survivors-A Systematic Review.青少年和青年癌症幸存者的教育、就业和财务结果:系统评价。
Curr Oncol. 2023 Sep 25;30(10):8720-8762. doi: 10.3390/curroncol30100631.
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Prevalence and risk of psychological distress, anxiety and depression in adolescent and young adult (AYA) cancer survivors: A systematic review and meta-analysis.青少年和年轻成年(AYA)癌症幸存者中心理困扰、焦虑和抑郁的发生率和风险:系统评价和荟萃分析。
Cancer Med. 2023 Sep;12(17):18354-18367. doi: 10.1002/cam4.6435. Epub 2023 Aug 10.
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Research involvement and engagement of adolescent and young adults in a cancer trajectory: a 5-year experience from a patient support facility at a university hospital.青少年和青年在癌症病程中的研究参与情况:来自大学医院患者支持机构的5年经验
Res Involv Engagem. 2023 Jul 21;9(1):56. doi: 10.1186/s40900-023-00464-z.
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9
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