Mieh Theresa M, Iwelunmor Juliet, Airhihenbuwa Collins O
Department of Biobehavioral Health at the Pennsylvania State University, University Park, PA 16802, USA.
J Health Care Poor Underserved. 2013 May;24(2):697-705. doi: 10.1353/hpu.2013.0091.
Caregiving for people living with HIV/AIDS (PLWHAs) reportedly affects the physical, mental, and socioeconomic well-being of family and volunteer caregivers. This study uses the PEN-3 cultural model to examine the positive, existential (unique), or negative roles and expectations that influence HIV and AIDS caregiving among home-based caregivers (HBCs) in Limpopo, South Africa. Data from 41 women who participated in four focus group discussions held in Limpopo provides a deeper understanding of culture in providing care and support to PLWHAs. Using the cultural empowerment domain of PEN-3, our analyses revealed the following themes: perceptions associated with HIV/AIDS caregiving, HBCs assuming the roles of family, and voicelessness of HBCs due to the lack of support. The findings highlight the resilience of HBCs in South Africa in responding to the stigmatized disease of HIV/AIDS in the context of cultural expectation of caring for the sick.
据报道，照顾感染艾滋病毒/艾滋病的人（PLWHA）会影响家庭和志愿者照顾者的身心健康以及社会经济福祉。本研究采用PEN-3文化模型，来审视影响南非林波波省居家照顾者（HBC）对艾滋病毒和艾滋病护理的积极、存在主义（独特）或消极角色及期望。来自41名参与了在林波波省举行的四次焦点小组讨论的女性的数据，为深入理解为PLWHA提供护理和支持过程中的文化现象提供了依据。利用PEN-3的文化赋权领域，我们的分析揭示了以下主题：与艾滋病毒/艾滋病护理相关的认知、HBC承担家庭角色以及由于缺乏支持导致HBC的无声状态。研究结果凸显了南非HBC在文化上对照顾病人的期望背景下，应对艾滋病毒/艾滋病这种污名化疾病时的复原力。
