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被诊断患有前列腺癌的男同性恋和双性恋男性的经历:来自在线焦点小组的结果。

The experiences of gay and bisexual men diagnosed with prostate cancer: results from an online focus group.

机构信息

School of Human Biosciences and Public Health, La Trobe University, Melbourne, Victoria, Australia.

出版信息

Eur J Cancer Care (Engl). 2013 Jul;22(4):522-9. doi: 10.1111/ecc.12058. Epub 2013 Jun 3.

DOI:10.1111/ecc.12058
PMID:23730947
Abstract

Research concerning gay and bisexual men diagnosed with prostate cancer is sparse. An online focus group was conducted over a 4-week period with participants responding to a range of discussion questions concerning their experiences following a prostate cancer diagnosis. Emerging themes were identified and consensus reached. A summary of each of the themes was produced which the coders agreed conveyed the essence of the online discussion. All men who took part in the online focus group reported that prostate cancer significantly impacted their lives. Unexpectedly, some participants actually gained a positive perspective and adopted a sense of empowerment. Participants spoke about emotional responses to a diagnosis of prostate cancer, accessing help and support, the impact of incontinence, the impact of sexual changes on identity, a re-evaluation of life, changed sexual relationships, the need to find the most suitable healthcare professionals and identification of current needs to improve quality of care. These areas of disquiet suggest that the psychological impact of this disease may be quite significant over an extended time-frame. Further research needs to be undertaken to assess the degree of distress accompanying the treatment of gay and bisexual men with prostate cancer.

摘要

针对被诊断患有前列腺癌的男同性恋和双性恋男性的研究很少。在为期 4 周的时间里,通过在线焦点小组的形式,让参与者对一系列与前列腺癌诊断后经历相关的讨论问题做出回应。确定了出现的主题并达成了共识。对每个主题都进行了总结,这些总结得到了编码员的认可,传达了在线讨论的精髓。所有参加在线焦点小组的男性都表示,前列腺癌对他们的生活产生了重大影响。出乎意料的是,一些参与者实际上获得了积极的观点,并获得了一种赋权感。参与者谈到了对前列腺癌诊断的情绪反应、寻求帮助和支持、尿失禁的影响、性变化对身份的影响、对生活的重新评估、改变的性关系、寻找最合适的医疗保健专业人员的必要性以及确定改善护理质量的当前需求。这些不安的领域表明,这种疾病的心理影响在很长一段时间内可能相当显著。需要进一步研究,以评估患有前列腺癌的男同性恋和双性恋男性在治疗过程中伴随的痛苦程度。

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