“最终，你会意识到你只能依靠自己”：前列腺癌对男同性恋和双性恋男性伴侣的影响。
"Ultimately, You Realize You're on Your Own": The Impact of Prostate Cancer on Gay and Bisexual Men Couples.
机构信息
Edson College of Nursing and Health Innovation, Arizona State University, Phoenix, AZ 85004, USA.
University of Michigan School of Nursing, University of Michigan, Ann Arbor, MI 48109, USA.
出版信息
Int J Environ Res Public Health. 2023 May 9;20(10):5756. doi: 10.3390/ijerph20105756.
An estimated one in three gay and bisexual (GB) male couples receive a prostate cancer (PCa) diagnosis over their life course with limited understanding of the impacts on their relationships. Psychological distress related to PCa diagnosis and treatment-related side effects have been shown to disrupt established GB partnership dynamics. Communication barriers often develop within GB relationships affected by PCa, further exacerbating couple tensions, isolating partners, and lowering quality of life for both patients and partners. In order to elaborate on these phenomena following a PCa diagnosis, we conducted focus group discussions with GB men in relationships. Men were recruited nationally through PCa support groups, and after completing consent procedures, they were invited to one of two focus group discussions conducted through video conference. Topics discussed included the diagnosis and medical decision making pertaining to PCa; healthcare provider experiences; the emotional, physical, and sexual impact of PCa diagnosis and treatment; sources of support and appraisal of resources; and partner involvement and communication. There were twelve GB men who participated in focus group discussions that were audio-recorded and transcribed, and analyzed using a thematic approach. GB couple experiences with PCa during and after treatment choice and recovery identified common patient-provider communication barriers. In particular, GB men reported difficulties in disclosing their sexuality and relationship to their providers, limiting conversations about treatment choice and partner engagement in care. Both patients and partners experienced times of being alone after treatment, either by choice or to give space to their partner. However, partners often did not explicitly discuss their preferences for being alone or together, which resulted in partners' disengagement in their relationship and the prostate cancer healthcare process. This disengagement could blunt the notable PCa survival benefits of partnership for GB men.
据估计，三分之一的男同性恋和双性恋（GB）伴侣在其一生中会被诊断出前列腺癌（PCa），但他们对这种疾病对其关系的影响知之甚少。与 PCa 诊断和治疗相关副作用相关的心理困扰已被证明会破坏已建立的 GB 伴侣关系的动态。在受 PCa 影响的 GB 关系中，沟通障碍常常会出现，这进一步加剧了夫妻之间的紧张关系，使伴侣孤立无援，并降低了患者和伴侣的生活质量。为了详细阐述 PCa 诊断后的这些现象，我们对处于伴侣关系中的 GB 男性进行了焦点小组讨论。通过 PCa 支持小组在全国范围内招募男性，在完成同意程序后，邀请他们参加通过视频会议进行的两个焦点小组讨论之一。讨论的主题包括与 PCa 相关的诊断和医疗决策；医疗保健提供者的经历；PCa 诊断和治疗对情绪、身体和性的影响；支持来源和资源评估；以及伴侣的参与和沟通。共有 12 名 GB 男性参加了焦点小组讨论，这些讨论进行了录音和转录，并使用主题方法进行了分析。GB 伴侣在治疗选择和康复期间和之后经历的 PCa 存在共同的医患沟通障碍。特别是，GB 男性报告说，他们难以向提供者透露自己的性取向和关系，这限制了关于治疗选择和伴侣参与治疗的对话。患者和伴侣在治疗后都有独自度过的时间，无论是出于自愿还是为了给伴侣留出空间。然而，伴侣们通常没有明确讨论他们独自或一起的偏好，这导致伴侣们在关系和前列腺癌医疗保健过程中脱离。这种脱离可能会削弱 GB 男性在伴侣关系中显著的 PCa 生存获益。
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