Royal Free Hampstead, NHS Trust, London, UK.
J Clin Nurs. 2013 Oct;22(19-20):2812-21. doi: 10.1111/jocn.12196. Epub 2013 Jun 7.
To report the experience of patients living with gastroparesis.
The complex illness of gastroparesis is a condition of delayed gastric emptying associated with a range of different symptoms, including nausea, vomiting and depression, resulting in altered eating patterns. Patients are often over-investigated, treatments are not always successful, and quality of life is often impaired.
A descriptive phenomenology study was undertaken to examine the experience of living with gastroparesis. Nine gastroparesis patients gave in-depth interviews. The interviews were transcribed, and framework analysis methods applied.
A descriptive phenomenology study was undertaken. Nine gastroparesis patients gave in-depth interviews. The interviews were transcribed, and framework analysis methods applied.
Four main themes emerged: the first described their experiences and opinions of medical professionals, the second their understanding of mental health and mental illness, the third how they managed social settings and the fourth their identity and security. Their behaviour around food and mealtimes was often associated with feelings of loss, isolation and rejection, which influenced their reported quality of life. These factors resulted in their personal struggle to understand how this chronic, stigmatising illness affects their identity and their need for security.
The complex illness of gastroparesis affects every aspect of patients' lives. As treatments for gastroparesis continue to evolve, therapies to help these patients address the psychological impact and the feelings of loss they report must not be overlooked.
A better understanding of these patients' sense of loss of normal eating behaviour and the associated psychological distress needs to inform gastroparesis service provision with a view to developing a more holistic service for this patient group.
报告患有胃轻瘫的患者的经验。
胃轻瘫是一种复杂的疾病，其特征是胃排空延迟，伴有一系列不同的症状，包括恶心、呕吐和抑郁，从而导致进食模式改变。患者经常接受过度检查，治疗并不总是有效，生活质量往往受损。
进行了一项描述性现象学研究，以检查患有胃轻瘫的患者的生活体验。9 名胃轻瘫患者接受了深入访谈。对访谈进行了转录，并应用了框架分析方法。
进行了一项描述性现象学研究。9 名胃轻瘫患者接受了深入访谈。对访谈进行了转录，并应用了框架分析方法。
出现了四个主要主题：第一个主题描述了他们对医疗专业人员的经验和看法，第二个主题描述了他们对心理健康和精神疾病的理解，第三个主题描述了他们如何管理社交环境，第四个主题描述了他们的身份和安全感。他们的饮食行为常常与失落、孤立和被拒绝的感觉相关联，这影响了他们报告的生活质量。这些因素导致他们个人努力理解这种慢性、污名化的疾病如何影响他们的身份和他们对安全的需求。
胃轻瘫的复杂疾病影响到患者生活的方方面面。随着胃轻瘫治疗方法的不断发展，帮助这些患者应对所报告的心理影响和失落感的治疗方法不容忽视。
更好地理解这些患者对正常进食行为的丧失感以及相关的心理困扰，需要为这一患者群体提供更全面的胃轻瘫服务，从而为这一患者群体提供更全面的服务。
