Woodhouse Sally, Hebbard Geoff, Knowles Simon R
Department of Psychological Sciences, Faculty of Health, Arts and Design, Swinburne University of Technology, Melbourne, Vic., Australia.
Department of Gastroenterology, The Royal Melbourne Hospital, RMH, Melbourne, Vic., Australia.
J Clin Nurs. 2017 Nov;26(21-22):3553-3563. doi: 10.1111/jocn.13725. Epub 2017 Feb 23.
To build on the understanding of how individuals experience gastroparesis, how gastroparesis impacts on their lives and how they adapt to living with gastroparesis.
Gastroparesis is a neurogastroenterological disorder associated with increased psychological distress and reduced quality of life. Research shows that gastroparesis poses a significant burden across many facets of life; however, less is known about how individuals cope and adapt to living with the condition.
The study employed an interpretive phenomenological approach with semistructured interviews and thematic analysis.
Ten gastroparesis patients were interviewed over the telephone (n = 8), Skype (n = 1) or face-to-face (n = 1). All interviews were audio-recorded and transcribed.
Key themes identified: (1) frustration, (2) identity and (3) coping and adaptation. Gastroparesis patients experience significant frustration around their diagnostic journey, being misunderstood and the burden of living with the illness. Patients differed in how they identified with the illness, and this appeared to be associated with adaptation and whether they remained socially engaged.
Gastroparesis is associated with significant frustration and burden; however, some patients adapt to living with the condition more effectively than others. Identity appears to play an important role in this relationship. Support aimed at fostering a health-focused and resilient identity may assist gastroparesis patients in adaptation.
The findings of this study can help nurses and other healthcare professionals better understand the experience of living with gastroparesis and the factors that help patients best adapt to living with the condition. Nurses can help promote resilience in patients by discussing the importance of being health-focused rather than illness-focused. Nurses can also support patients by helping them problem-solve issues that may arise around social eating and remaining socially engaged.
深化对个体如何体验胃轻瘫、胃轻瘫如何影响其生活以及他们如何适应胃轻瘫生活的理解。
胃轻瘫是一种神经胃肠病学疾病，与心理困扰增加和生活质量下降相关。研究表明，胃轻瘫在生活的许多方面都带来了重大负担；然而，对于个体如何应对和适应这种疾病的了解较少。
本研究采用解释性现象学方法，进行半结构化访谈和主题分析。
通过电话（n = 8）、Skype（n = 1）或面对面（n = 1）对10名胃轻瘫患者进行访谈。所有访谈均进行录音并转录。
确定的关键主题为：（1）挫折感，（2）身份认同，（3）应对与适应。胃轻瘫患者在诊断过程、被误解以及疾病生活负担方面经历了重大挫折。患者在对疾病的认同方式上存在差异，这似乎与适应情况以及他们是否保持社交参与有关。
胃轻瘫与重大挫折感和负担相关；然而，一些患者比其他患者更能有效地适应这种疾病。身份认同似乎在这种关系中起着重要作用。旨在培养以健康为重点和有复原力的身份认同的支持可能有助于胃轻瘫患者适应。
本研究结果可帮助护士和其他医疗保健专业人员更好地理解胃轻瘫患者的生活体验以及有助于患者最佳适应这种疾病的因素。护士可以通过讨论以健康为重点而非以疾病为重点的重要性来帮助促进患者的复原力。护士还可以通过帮助患者解决社交饮食和保持社交参与方面可能出现的问题来支持患者。
