Veterans Affairs Palo Alto Health Care System Geriatrics Research Education and Clinical Center. Palo Alto, California;, †Division of Nephrology, Stanford University School of Medicine, Palo Alto, California, ‡Center to Advance Palliative Care and Department of Geriatrics and Palliative Medicine, Icahn School of Medicine at Mount Sinai, New York, New York.
Clin J Am Soc Nephrol. 2013 Oct;8(10):1783-90. doi: 10.2215/CJN.02180213. Epub 2013 Jun 6.
Patients with ESRD experience complex and costly care that does not always meet their needs. Palliative care, which focuses on improving quality of life and relieving suffering for patients with serious illnesses, could address a large unmet need among patients with ESRD. Strengthening palliative care is a top policy priority for health reform efforts based on strong evidence that palliative care improves value. This commentary outlines palliative care policies for patients with ESRD and is directed at policymakers, dialysis providers, nephrology professional societies, accreditation organizations, and funding agencies who play a key role in the delivery and determination of quality of ESRD care. Herein we suggest policies to promote palliative care for patients with ESRD by addressing key barriers, including the lack of access to palliative care, lack of capacity to deliver palliative care, and a limited evidence base. We also provide examples of how these policies could be implemented within the existing ESRD care infrastructure.
终末期肾病患者的医疗护理复杂且昂贵,但往往无法满足其需求。姑息治疗专注于提高重病患者的生活质量并缓解其痛苦,可以满足终末期肾病患者的大量未满足需求。强化姑息治疗是基于强有力的证据(姑息治疗可提高价值)的卫生改革努力的首要政策重点。本文概述了终末期肾病患者的姑息治疗政策,面向在提供和确定终末期肾病护理质量方面发挥关键作用的政策制定者、透析提供者、肾脏病专业协会、认证组织和资助机构。本文建议通过解决关键障碍来促进终末期肾病患者的姑息治疗,包括缺乏姑息治疗的途径、提供姑息治疗的能力有限以及证据基础有限。我们还提供了如何在现有的终末期肾病护理基础设施内实施这些政策的示例。