Martín-Fernández Roberto, Abt-Sacks Analía, Perestelo-Perez Lilisbeth, Serrano-Aguilar Pedro
Servicio de Evaluación, Servicio Canario de Salud, Santa Cruz de Tenerife, España.
Rev Esp Salud Publica. 2013 Jan-Feb;87(1):59-72. doi: 10.4321/S1135-57272013000100007.
The patient autonomy and the greater role for women with breast cancer in the decisions about their health are recent issues in healthcare. The objective of this work is to identify and characterize the elements that influence them in treatment decisions.
A phenomenological type qualitative study. Theoretical Sampling included 70 women diagnosed with breast cancer. 45 semi structured interviews and 3 focus groups were performed between October 2009 and July 2010 in 15 regions of Spain. The analysis was based on the principles of grounded theory with the support of Atlas.ti v6.1.
Patients are likely to take an active or passive role regarding decision-making depending on different variables such as their age, the information available, their self-assessment as capable agents to make decisions and the relative importance given to physical appearance. As the disease progresses, it can cause a change in women attitude, from an initially passive attitude to a more active role. The attitude of health professionals concerning shared decision-making and the information they offer determines patient participation while the family plays an essential role as a support or reinforcement of decisions made by patients.
The patients' attitude regarding the decision-making of patients is very variable, becoming increasingly important the emotional status, the level of information available and the influence of the context.
患者自主权以及乳腺癌女性在自身健康决策中发挥更大作用是医疗保健领域的新问题。本研究的目的是确定并描述影响她们治疗决策的因素。
一项现象学类型的定性研究。理论抽样包括70名被诊断为乳腺癌的女性。2009年10月至2010年7月期间,在西班牙的15个地区进行了45次半结构化访谈和3次焦点小组讨论。分析基于扎根理论原则,并借助Atlas.ti v6.1软件。
患者在决策中可能扮演主动或被动角色,这取决于不同变量,如年龄、可得信息、对自身作为决策主体能力的自我评估以及对外表的重视程度。随着疾病进展,女性的态度可能会发生变化,从最初的被动态度转变为更积极的角色。医护人员对共同决策的态度以及他们提供的信息决定了患者的参与程度,而家庭作为患者决策的支持或强化力量发挥着至关重要的作用。
患者对决策的态度非常多变,情绪状态、可得信息水平和环境影响变得越来越重要。