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倾听患者的声音:与糖尿病自我管理相关的语言指标

Listening to patients' voices: linguistic indicators related to diabetes self-management.

作者信息

Connor Ulla, Anton Marta, Goering Elizabeth, Lauten Kathryn, Hayat Amir, Roach Paris, Balunda Stephanie

机构信息

Indiana University-Purdue University Indianapolis, USA.

出版信息

Commun Med. 2012;9(1):1-12.

Abstract

A great deal of research in health care has examined a wide range of variables to better understand the degree to which patients follow the advice of medical professionals in managing their health, known as adherence. This paper explains the development of the linguistic systems to describe and evaluate two psychosocial constructs (i.e. control orientation and agency) that have been found to be related to adherence in previous research for subjects with diabetes (Trento et al. 2007; Wangberg 2007; O'Hea et al. 2009). The present data came from 43 semi-structured in-depth interviews of subjects with Type 2 diabetes. One-on-one interviews with open-ended questions elicited subjects' 'stories' about living with diabetes, and the transcribed interviews were analyzed to develop the linguistic systems of control orientation and agency. The resultant systems were applied to the 43 interviews by raters with high inter-rater reliability. The results showed demarcations of clearly identified codings of patient types. The paper presents the linguistic coding systems developed in the study, the results of their application to the patient interview data, and recommendations for improved communication with patients.

摘要

医疗保健领域的大量研究考察了一系列变量,以更好地理解患者在管理自身健康方面遵循医学专业人员建议的程度,即依从性。本文阐述了语言系统的发展,该系统用于描述和评估两种心理社会结构(即控制取向和能动性),此前的研究发现这两种结构与糖尿病患者的依从性相关(特伦托等人,2007年;万伯格,2007年;奥黑等人,2009年)。目前的数据来自对43名2型糖尿病患者进行的半结构化深度访谈。通过一对一访谈中的开放式问题,引出了患者关于糖尿病生活的“故事”,并对转录的访谈进行分析,以建立控制取向和能动性的语言系统。由评分者将所得系统应用于这43次访谈,评分者间的信度很高。结果显示了明确识别出的患者类型编码划分。本文介绍了该研究中开发的语言编码系统、将其应用于患者访谈数据的结果,以及改善与患者沟通的建议。

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