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痴呆症患者在特殊护理单元中的参与度:一项正在失败的原则?

Patient participation in special care units for persons with dementia: A losing principle?

作者信息

Helgesen Ann Karin, Larsson Maria, Athlin Elsy

机构信息

Karlstad University, Sweden; Østfold University College, Norway.

出版信息

Nurs Ethics. 2014 Feb;21(1):108-18. doi: 10.1177/0969733013486796. Epub 2013 Jun 21.

DOI:10.1177/0969733013486796
PMID:23793069
Abstract

The aim of this study was to explore the experience of nursing personnel with respect to patient participation in special care units for persons with dementia in nursing homes, with focus on everyday life. The study has an explorative grounded theory design. Eleven nursing personnel were interviewed twice. Patient participation is regarded as being grounded in the idea that being master of one's own life is essential to the dignity and self-esteem of all people. Patient participation was described at different levels as letting the resident make their own decisions, adjusting the choices, making decisions on behalf of the residents and forcing the residents. The educational level and commitment of the nursing personnel and how often they were on duty impacted the level that each person applied, as did the ability of the residents to make decisions, and organizational conditions, such as care culture, leadership and number of personnel.

摘要

本研究的目的是探讨护理人员在养老院痴呆症患者特殊护理单元中关于患者参与的体验,重点关注日常生活。该研究采用探索性扎根理论设计。对11名护理人员进行了两次访谈。患者参与被认为基于这样一种理念,即掌控自己的生活对所有人的尊严和自尊至关重要。患者参与在不同层面被描述为让居民自己做决定、调整选择、代表居民做决定以及强迫居民。护理人员的教育水平和敬业程度以及他们值班的频率,与居民的决策能力以及诸如护理文化、领导风格和人员数量等组织条件一样,都会影响每个人应用的层面。

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引用本文的文献

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The Influence of Care Home Managers' Leadership on the Delivery of Person-Centred Care for People Living with Dementia: A Systematic Review.养老院管理人员的领导力对痴呆症患者以人为主的护理服务的影响:一项系统综述。
J Nurs Manag. 2023 May 17;2023:9872272. doi: 10.1155/2023/9872272. eCollection 2023.
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A systematic review of specialty dementia care units in long-term care settings.长期护理机构中专科痴呆护理单元的系统评价。
Int J Geriatr Psychiatry. 2023 Apr;38(4):e5907. doi: 10.1002/gps.5907.
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Context, mechanisms and outcomes of dementia special care units: An initial programme theory based on realist methodology.
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Evaluation of Person-Centredness in Rehabilitation for People Living with Dementia Is Needed: A Review of the Literature.痴呆症患者康复中以患者为中心的评估需求:文献综述
J Aging Res. 2019 May 2;2019:8510792. doi: 10.1155/2019/8510792. eCollection 2019.
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Ethical dilemmas concerning autonomy when persons with dementia wish to live at home: a qualitative, hermeneutic study.痴呆症患者希望居家生活时自主权方面的伦理困境:一项质性诠释学研究
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