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利用行政数据库确定先天性心脏病的临床管理及治疗结果。

Use of an administrative database to determine clinical management and outcomes in congenital heart disease.

作者信息

Gutgesell Howard P, Hillman Diane G, McHugh Kimberly E, Dean Peter, Matherne G Paul

机构信息

Department of Pediatrics, Division of Cardiology, University of Virginia Health System, Charlottesville, VA, USA.

出版信息

World J Pediatr Congenit Heart Surg. 2011 Oct 1;2(4):593-6. doi: 10.1177/2150135111414065.

DOI:10.1177/2150135111414065
PMID:23804472
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC4004178/
Abstract

We review our 16-year experience using the large, multi-institutional database of the University HealthSystem Consortium to study management and outcomes in congenital heart surgery for hypoplastic left heart syndrome, transposition of the great arteries, and neonatal coarctation. The advantages, limitations, and use of administrative databases by others to study congenital heart surgery are reviewed.

摘要

我们回顾了利用大学卫生系统联盟的大型多机构数据库，研究左心发育不全综合征、大动脉转位和新生儿主动脉缩窄的先天性心脏手术管理及结果的16年经验。同时，我们也回顾了他人使用管理数据库研究先天性心脏手术的优点、局限性及用途。

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Use of an administrative database to determine clinical management and outcomes in congenital heart disease.利用行政数据库确定先天性心脏病的临床管理及治疗结果。
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2
Perioperative feeding management of neonates with CHD: analysis of the Pediatric Cardiac Critical Care Consortium (PC4) registry.先天性心脏病新生儿围手术期喂养管理：儿科心脏重症监护联盟（PC4）登记分析
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Contemporary patterns of surgery and outcomes for aortic coarctation: an analysis of the Society of Thoracic Surgeons Congenital Heart Surgery Database.当代主动脉缩窄手术模式和结局：胸外科医师学会先天性心脏病数据库分析。
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Impact of postoperative complications on hospital costs following the Norwood operation.诺伍德手术后术后并发症对医院费用的影响。
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本文引用的文献

1
Three-stage palliation of hypoplastic left heart syndrome in the University HealthSystem Consortium.大学卫生系统联盟中左心发育不全综合征的三期姑息治疗
Congenit Heart Dis. 2010 Jan-Feb;5(1):8-15. doi: 10.1111/j.1747-0803.2009.00367.x.
2
Comparison of pediatric cardiac surgical mortality rates from national administrative data to contemporary clinical standards.利用国家行政数据将儿科心脏手术死亡率与当代临床标准进行比较。
Ann Thorac Surg. 2009 Jan;87(1):216-22; discussion 222-3. doi: 10.1016/j.athoracsur.2008.10.032.
3
Making sense of congenital cardiac disease with a research database: The Congenital Heart Surgeons' Society Data Center.
Cardiol Young. 2008 Dec;18 Suppl 2:152-62. doi: 10.1017/S1047951108002849.
4
Databases for assessing the outcomes of the treatment of patients with congenital and paediatric cardiac disease--the perspective of cardiology.评估先天性和小儿心脏病患者治疗结果的数据库——心脏病学视角
Cardiol Young. 2008 Dec;18 Suppl 2:116-23. doi: 10.1017/S1047951108002825.
5
The importance of nomenclature for congenital cardiac disease: implications for research and evaluation.先天性心脏病命名法的重要性：对研究和评估的影响。
Cardiol Young. 2008 Dec;18 Suppl 2(0 2):92-100. doi: 10.1017/S1047951108002515.
6
Sex-related disparity in surgical mortality among pediatric patients.儿科患者手术死亡率中的性别差异。
Congenit Heart Dis. 2006 May;1(3):77-88. doi: 10.1111/j.1747-0803.2006.00013.x.
7
Risk factors for deaths occurring within 30 days and 1 year after hospital discharge for cardiac surgery among pediatric patients.小儿心脏手术后30天内及出院后1年内死亡的危险因素。
Am Heart J. 2006 Aug;152(2):386-93. doi: 10.1016/j.ahj.2005.12.016.
8
Racial and ethnic disparities in mortality following congenital heart surgery.先天性心脏手术后死亡率的种族和民族差异。
Pediatr Cardiol. 2006 May-Jun;27(3):321-8. doi: 10.1007/s00246-005-7121-4.
9
Validity of hospital discharge data for identifying infants with cardiac defects.用于识别患有心脏缺陷婴儿的医院出院数据的有效性。
J Perinatol. 2005 Nov;25(11):737-42. doi: 10.1038/sj.jp.7211382.
10
Factors associated with increased resource utilization for congenital heart disease.与先天性心脏病资源利用增加相关的因素。
Pediatrics. 2005 Sep;116(3):689-95. doi: 10.1542/peds.2004-2071.