Keim-Malpass Jessica, Albrecht Tara A, Steeves Richard H, Danhauer Suzanne C
1Wake Forest School of Medicine, Winston-Salem, NC, USA.
West J Nurs Res. 2013 Nov;35(10):1309-24. doi: 10.1177/0193945913492897. Epub 2013 Jun 30.
Many young women with cancer have a high symptom burden and negative psychosocial consequences as a result of their disease. To offset some of these experiences, a growing number of young women with cancer are writing about their experience with complementary therapies through online illness blogs. The purpose of this qualitative study was to examine descriptions of complementary therapy use among young women (diagnosed between 20 and 39 years of age) who maintained an online cancer blog. Women's narratives describe several themes of the experience of using complementary therapies including awakening, new identities (that incorporate loss), the good stuff, and release. Online illness blogs allow researchers to understand the complete experience of the patient through personal accounts and substantially contributes to the body of knowledge surrounding cancer in young adulthood and complementary therapy use.
许多患癌年轻女性因疾病承受着巨大的症状负担和负面的心理社会后果。为了缓解其中一些体验，越来越多的患癌年轻女性通过在线疾病博客来讲述她们使用补充疗法的经历。这项定性研究的目的是考察在维护在线癌症博客的年轻女性（年龄在20至39岁之间）中使用补充疗法的描述。女性的叙述描述了使用补充疗法经历的几个主题，包括觉醒、新身份（包含失落）、美好事物和释放。在线疾病博客使研究人员能够通过个人叙述了解患者的完整经历，并极大地丰富了有关青年期癌症和补充疗法使用的知识体系。
