Perosa Gimol Benzaquen, Amato Isabel de Andrade, Rugolo Ligia Maria S S, Ferrari Giesela Fleisher, de Oliveira Maria Carolina F A
Faculdade de Medicina, Botucatu da Universidade Estadual Paulista Júlio de Mesquita Filho (Unesp), Botucatu, SP, Brasil.
Rev Paul Pediatr. 2013 Jun;31(2):145-51. doi: 10.1590/s0103-05822013000200003.
To evaluate the quality of life of asthmatic children and adolescents, its relation with sociodemographic and clinical variables, and maternal coping strategies.
Cross-sectional study in which children and adolescents with asthma answered a quality of life questionnaire, and their mothers did the same with a coping scale.
Out of the 42 children and adolescents investigated, 74% were classified as having mild/severe persistent asthma; 19%, mild persistent asthma; and 7%, intermittent asthma. A total of 69% of the participants showed impaired quality of life with mean scores ranging between 4.7 and 3.5, with greater harm in the domain of symptoms (score=3.6). There was a significant association between maternal schooling and the general index of quality of life, whereas maternal coping strategies were not associated with the severity of asthma. A large number of strategies used by mothers to cope with their children's crises were related to the management of stressors or to religious practices, and the latter presented negative correlation with the children's quality of life general index, showing that mothers whose children had worse quality of life used more religious coping.
Asthmatic children, particularly those with moderate/severe persistent asthma, showed significant alterations as to quality of life. The high percentage of mothers using religious strategies, particularly in face of more severe clinical conditions, seem to indicate that they feel powerless to act, thus requiring concrete and useful orientation to low income families.
评估哮喘儿童和青少年的生活质量、其与社会人口学及临床变量的关系以及母亲的应对策略。
采用横断面研究，哮喘儿童和青少年回答生活质量问卷，其母亲则填写应对量表。
在调查的42名儿童和青少年中，74%被归类为患有轻度/重度持续性哮喘；19%为轻度持续性哮喘；7%为间歇性哮喘。共有69%的参与者生活质量受损，平均得分在4.7至3.5之间，在症状领域危害更大（得分=3.6）。母亲的受教育程度与生活质量总体指数之间存在显著关联，而母亲的应对策略与哮喘严重程度无关。母亲用于应对孩子危机的大量策略与应激源管理或宗教活动有关，后者与孩子生活质量总体指数呈负相关，表明孩子生活质量较差的母亲更多地采用宗教应对方式。
哮喘儿童，尤其是那些患有中度/重度持续性哮喘的儿童，在生活质量方面表现出显著改变。高比例的母亲采用宗教策略，尤其是在面对更严重的临床状况时，这似乎表明她们感到无力采取行动，因此需要为低收入家庭提供具体且有用的指导。
