Stinson Jennifer, Kohut Sara Ahola, Spiegel Lynn, White Meghan, Gill Navreet, Colbourne Gina, Sigurdson Samantha, Duffy Karen Watanabe, Tucker Lori, Stringer Elizabeth, Hazel Beth, Hochman Jacqueline, Reiss John, Kaufman Miriam
Int J Adolesc Med Health. 2014;26(2):159-74. doi: 10.1515/ijamh-2013-0512.
The transition from pediatric to adult health care can be challenging for adolescents with chronic illnesses. As a result, many adolescents are unable to transfer to adult health care successfully. Adequate measurement of transition readiness and transfer satisfaction with disease management is necessary in order to determine areas to target for intervention towards improving transfer outcomes.
This study aims to systematically review and critically appraise research on transition readiness and transfer satisfaction measures for adolescents with chronic illnesses as well as to assess the psychometric quality of these measures.
Electronic searches were conducted in MEDLINE, EMBASE, CINAHL, PsychINFO, ERIC, and ISI Web of Knowledge for transition readiness and transfer satisfaction measures for adolescents with chronic health conditions. Two reviewers independently selected articles for review and assessed methodological quality.
In all, eight readiness and six satisfaction measures met the inclusion criteria, for a total of 14 studies, which were included in the final analysis. None of these measures have well-established evidence of reliability and validity. Most of the measures were developed ad hoc by the study investigators, with minimal to no evidence of reliability and/or validity using the Cohen criteria and COSMIN checklist.
This research indicates a major gap in our knowledge of transitional care in this population, because there is currently no well-validated questionnaire that measures readiness for transfer to adult health care. Future research must focus on the development of well-validated transition readiness questionnaires, the validation of existing measures, and reaching consensus on outcomes of successful transfer.
对于患有慢性疾病的青少年来说，从儿科医疗过渡到成人医疗可能具有挑战性。因此，许多青少年无法成功过渡到成人医疗。为了确定改善过渡结果的干预目标领域，有必要对过渡准备情况和对疾病管理的过渡满意度进行充分测量。
本研究旨在系统回顾和批判性评价关于患有慢性疾病青少年的过渡准备情况和过渡满意度测量的研究，并评估这些测量方法的心理测量质量。
在MEDLINE、EMBASE、CINAHL、PsychINFO、ERIC和ISI Web of Knowledge中进行电子检索，以查找患有慢性健康状况青少年的过渡准备情况和过渡满意度测量方法。两名评审员独立选择文章进行评审并评估方法学质量。
共有八项准备情况测量方法和六项满意度测量方法符合纳入标准，共14项研究被纳入最终分析。这些测量方法均没有充分确立的可靠性和有效性证据。大多数测量方法是由研究调查人员临时开发的，根据科恩标准和COSMIN清单，可靠性和/或有效性证据极少或没有。
这项研究表明我们在这一人群的过渡护理知识方面存在重大差距，因为目前没有经过充分验证的问卷来测量向成人医疗过渡的准备情况。未来的研究必须专注于开发经过充分验证的过渡准备情况问卷、验证现有测量方法以及就成功过渡的结果达成共识。
