Petersen Helle Vendel, Ladelund Steen, Carlsson Christina, Nilbert Mef
Department of Oncology, Institute of Clinical Sciences, Lund University, Lund, Sweden.
Hered Cancer Clin Pract. 2013 Jul 5;11(1):7. doi: 10.1186/1897-4287-11-7.
Most individuals who learn about hereditary cancer manage well, but identification of subgroups who find this knowledge burdening would allow psychosocial intervention. The objective of the study was to assess sense of coherence (SOC) in individuals with Lynch syndrome with comparison to a general population and correlation to self-concept.
A total of 345 individuals with Lynch syndrome completed the 13-item SOC scale and the 20-item Lynch syndrome self-concept scale. SOC scores were compared to a general Danish population and were correlated to self-concept estimates in individuals with Lynch syndrome. Characteristics of subgroups with adverse scores were described.
Individuals with Lynch syndrome reported SOC scores similar to the general population. SOC and self-concept correlated well with a correlation coefficient of -0.51. Subsets with convergent and divergent scores, which may reflect different effects from knowledge about hereditary cancer, were identified.
Individuals with Lynch syndrome report SOC scores similar to the general population. SOC and self-concept correlate well but allow identification of subset who report adverse outcome and may be relevant for targeted intervention.
大多数了解遗传性癌症的个体应对良好，但识别出那些觉得这一知识带来负担的亚组人群将有助于进行心理社会干预。本研究的目的是评估林奇综合征患者的连贯感（SOC），并与普通人群进行比较，同时研究其与自我概念的相关性。
共有345名林奇综合征患者完成了13项连贯感量表和20项林奇综合征自我概念量表。将连贯感得分与丹麦普通人群进行比较，并与林奇综合征患者的自我概念评估结果进行相关性分析。描述了得分较低亚组人群的特征。
林奇综合征患者报告的连贯感得分与普通人群相似。连贯感与自我概念的相关性良好，相关系数为-0.51。识别出了得分趋同和趋异的亚组，这可能反映了遗传性癌症相关知识的不同影响。
林奇综合征患者报告的连贯感得分与普通人群相似。连贯感与自我概念相关性良好，但能识别出报告不良结果且可能适合进行针对性干预的亚组人群。
