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深陷乳腺癌网络:乳腺癌患者对基于网络的信息资源使用情况评估

Tangled in the breast cancer web: an evaluation of the usage of web-based information resources by breast cancer patients.

作者信息

Nguyen Sonia Kim Anh, Ingledew Paris-Ann

机构信息

British Columbia Cancer Agency-Fraser Valley Centre, Surrey, BC, Canada.

出版信息

J Cancer Educ. 2013 Dec;28(4):662-8. doi: 10.1007/s13187-013-0509-6.

Abstract

This study describes Internet use by breast cancer patients highlighting search patterns and examining the impact of web-based information on the clinical encounter. From September 2011 to January 2012, breast cancer patients at a cancer center completed a survey. Answers were closed and open-ended. Eighty-one patients were approached and 56 completed the survey. Forty-five (80 %) respondents used the Internet and 32 (71 %) searched for breast cancer information. All used Google as their principal search engine. To evaluate quality, 47 % referred to author credentials and 41 % examined references. Most sought information with respect to treatment or prognosis. Eighty percent felt that the information increased their knowledge and influenced treatment decision making for 53 %. This study highlights search patterns and factors used by breast cancer patients in seeking web-based information. Physicians must appreciate that patients use the Internet and address discrepancies between information sought and that which is available.

摘要

本研究描述了乳腺癌患者的互联网使用情况,重点突出搜索模式,并探讨了基于网络的信息对临床诊疗的影响。2011年9月至2012年1月,一家癌症中心的乳腺癌患者完成了一项调查。问题包括封闭式和开放式。共邀请了81名患者,56名完成了调查。45名(80%)受访者使用互联网,32名(71%)搜索过乳腺癌信息。所有人都将谷歌作为主要搜索引擎。为评估信息质量,47%的人参考了作者资质,41%的人查看了参考文献。大多数人寻求治疗或预后方面的信息。80%的人认为这些信息增加了他们的知识,53%的人认为这些信息影响了治疗决策。本研究突出了乳腺癌患者在寻求网络信息时的搜索模式和相关因素。医生必须认识到患者使用互联网的情况,并解决患者所寻求信息与可得信息之间的差异。

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