Lamparello Brooke M, Bueno Ericka M, Diaz-Siso Jesus Rodrigo, Sisk Geoffroy C, Pomahac Bohdan
Division of Plastic Surgery, Brigham and Women's Hospital, Harvard Medical School, Boston, Mass.
Eplasty. 2013 Jul 4;13:e36. Print 2013.
Face transplantation is the innovative application of microsurgery and immunology to restore appearance and function to those with severe facial disfigurements. Our group aims to establish a multidisciplinary education program that can facilitate informed consent and build a strong knowledge base in patients to enhance adherence to medication regimes, recovery, and quality of life.
We analyzed handbooks from our institution's solid organ transplant programs to identify topics applicable to face transplant patients. The team identified unique features of face transplantation that warrant comprehensive patient education.
We created a 181-page handbook to provide subjects interested in pursuing transplantation with a written source of information on the process and team members and to address concerns they may have. While the handbook covers a wide range of topics, it is easy to understand and visually appealing.
Face transplantation has many unique aspects that must be relayed to the patients pursuing this novel therapy. Since candidates lack third-party support groups and programs, the transplant team must provide an extensive educational component to enhance this complex process.
As face transplantation continues to develop, programs must create sound education programs that address patients' needs and concerns to facilitate optimal care.
面部移植是显微外科和免疫学的创新性应用，旨在为严重面部毁容者恢复容貌和功能。我们团队的目标是建立一个多学科教育项目，以促进知情同意，并在患者中建立坚实的知识基础，从而提高其对药物治疗方案的依从性、促进康复并提高生活质量。
我们分析了本机构实体器官移植项目的手册，以确定适用于面部移植患者的主题。该团队确定了面部移植的独特特征，这些特征需要对患者进行全面教育。
我们编写了一本181页的手册，为有兴趣接受移植的受试者提供关于手术过程和团队成员的书面信息来源，并解决他们可能存在的担忧。虽然手册涵盖了广泛的主题，但易于理解且具有视觉吸引力。
面部移植有许多独特之处，必须向寻求这种新型治疗方法的患者传达。由于候选者缺乏第三方支持团体和项目，移植团队必须提供广泛的教育内容，以优化这一复杂过程。
随着面部移植的不断发展，各项目必须制定完善的教育项目，以满足患者的需求和担忧，从而促进最佳治疗效果。
