Delany Clare, Galvin Jane
The Children's Bioethics Centre, The Royal Children's Hospital Melbourne , Parkville, Melbourne, VIC , Australia .
Dev Neurorehabil. 2014 Oct;17(5):347-54. doi: 10.3109/17518423.2013.784816. Epub 2013 Jul 19.
Sharing information and decisions with children and their parents is critical in pediatric rehabilitation. Although the ethical significance and clinical benefits of sharing decisions are established, approaches for implementing shared decision-making in clinical practice are still developing.
To explore the ethical challenges of sharing information and decisions with one family in pediatric occupational therapy.
We used a single qualitative in-depth interview with an occupational therapist to examine the ethical dimensions of sharing decisions.
We found that asking what was ethically at stake in the information-sharing process, highlighted how timing and style of information sharing impacts on understanding and collaboration within the therapeutic relationship. Using ethics-based questions assisted in drawing out the complexity of implementing the ideals of sharing information and decisions in pediatric practice.
Reflecting on ethical dimensions of communication with families assists to identify approaches to shared decision-making in clinical practice.
在儿科康复中,与儿童及其父母分享信息和决策至关重要。尽管分享决策的伦理意义和临床益处已得到确立,但在临床实践中实施共同决策的方法仍在不断发展。
探讨在儿科职业治疗中与一个家庭分享信息和决策所面临的伦理挑战。
我们对一名职业治疗师进行了一次定性深入访谈,以审视分享决策的伦理维度。
我们发现,询问信息共享过程中在伦理上存在的利害关系,凸显了信息共享的时机和方式如何影响治疗关系中的理解与协作。基于伦理的问题有助于揭示在儿科实践中实施信息和决策共享理想的复杂性。
思考与家庭沟通的伦理维度有助于确定临床实践中共同决策的方法。