Division of Paediatric Emergency Care and Paediatric Surgery, The Queen Silvia Children's Hospital, Sahlgrenska University Hospital, Gothenburg, Sweden.
J Adv Nurs. 2014 Mar;70(3):575-86. doi: 10.1111/jan.12218. Epub 2013 Jul 22.
A descriptive study of parents' experiences with neonatal home care following initial care in the neonatal intensive care unit.
As survival rates improve among premature and critically ill infants with an increased risk of morbidity, parents' responsibilities for neonatal care grow in scope and degree under the banner of family-centred care. Concurrent with medical advances, new questions arise about the role of parents and the experience of being provided neonatal care at home.
An interview study with a phenomenological hermeneutic approach.
Parents from a Swedish neonatal (n = 22) home care setting were extensively interviewed within one year of discharge. Data were collected during 2011-2012.
The main theme of the findings is that parents experience neonatal home care as an inner emotional journey, from having a child to being a parent. This finding derives from three themes: the parents' experience of leaving the hospital milieu in favour of establishing independent parenthood, maturing as a parent and processing experiences during the period of neonatal intensive care.
This study suggests that neonatal home care is experienced as a care structure adjusted to incorporate parents' needs following discharge from a neonatal intensive care unit. Neonatal home care appears to bridge the gap between hospital and home, supporting the family's adaptation to life in the home setting. Parents become empowered to be primary caregivers, having nurse consultants serving the needs of the whole family. Neonatal home care may therefore be understood as the implementation of family-centred care during the transition from NICU to home.
描述父母在新生儿重症监护病房接受初始治疗后，在家中接受新生儿护理的体验。
随着早产儿和患有严重疾病的婴儿的存活率提高，他们的发病率风险增加，父母在以家庭为中心的护理原则下，对新生儿护理的责任在范围和程度上都有所增加。随着医疗的进步，人们对父母的角色和在家中接受新生儿护理的体验产生了新的疑问。
一项采用现象学解释学方法的访谈研究。
在出院后一年内，对瑞典新生儿（n=22）家庭护理环境中的父母进行了广泛的访谈。数据收集于 2011 年至 2012 年期间。
研究结果的主要主题是父母将新生儿家庭护理体验为一种内在的情感之旅，从拥有孩子到成为父母。这一发现源自三个主题：父母离开医院环境、建立独立父母身份的体验，成长为父母的过程以及在新生儿重症监护期间的体验。
本研究表明，新生儿家庭护理被视为一种护理结构，旨在满足父母从新生儿重症监护病房出院后的需求。新生儿家庭护理似乎弥合了医院和家庭之间的差距，支持家庭在家庭环境中的适应。父母有能力成为主要照顾者，有护士顾问满足整个家庭的需求。因此，新生儿家庭护理可以被理解为从新生儿重症监护病房到家庭的过渡期间实施以家庭为中心的护理。
