Powell Richard A, Harding Richard, Namisango Eve, Katabira Elly, Gwyther Liz, Radbruch Lukas, Murray Scott A, El-Ansary Maged, Leng Mhoira, Ajayi Ike O, Blanchard Charmaine, Kariuki Helen, Kasirye Ivy, Namukwaya Elizabeth, Gafer Nahla, Casarett David, Atieno Mackuline, Mwangi-Powell Faith N
HealthCare Chaplaincy, New York, New York, USA.
King's College London, Department of Palliative Care, Policy and Rehabilitation, Cicely Saunders Institute, London, United Kingdom; Palliative Medicine Programme, Department of Public Health and Family Medicine, University of Cape Town, Cape Town, South Africa.
J Pain Symptom Manage. 2014 Feb;47(2):315-24. doi: 10.1016/j.jpainsymman.2013.03.022. Epub 2013 Jul 18.
Palliative care research in Africa is in its relative infancy, with dedicated financial support extremely limited. Therefore, setting research priorities to optimize use of limited resources is imperative.
To develop a prioritized research agenda for palliative care in Africa.
We used a two-stage process involving palliative care professionals and researchers: 1) generation of an initial topic list at a consultative workshop of experts and 2) prioritization of that list using a consensus development process, the nominal group technique.
Phase 1: 41 topics were generated across five groups, with several topics nominated in more than one group. Phase 2: 16 topics and three broad thematic areas were identified. The two most prioritized topics within each of the three themes were the following: Theme 1: patient, family, and volunteers-1) care outcomes and the impact of palliative care as perceived by patients and caregivers and 2) palliative care needs of children; Theme 2: health providers-1) impact of palliative care training on care and practice and 2) integration of palliative care and antiretroviral therapy services; and Theme 3: health systems-1) palliative care needs assessments at the micro-, meso-, and macro-levels and 2) integration of palliative care into health systems and educational curricula.
Consensus-based palliative care topics determined by the study can assist researchers in optimizing limited research capacities by focusing on these prioritized areas. Subsequent to the identification and publication of the research agenda, concrete steps will be undertaken by the African Palliative Care Research Network and other partners to help implement it.
非洲的姑息治疗研究尚处于起步阶段，专门的资金支持极为有限。因此，确定研究重点以优化有限资源的利用势在必行。
制定非洲姑息治疗的优先研究议程。
我们采用了一个两阶段的过程，涉及姑息治疗专业人员和研究人员：1）在专家咨询研讨会上生成初始主题列表；2）使用共识发展过程——名义群体技术对该列表进行优先排序。
第一阶段：在五个组中生成了41个主题，有几个主题在多个组中被提名。第二阶段：确定了16个主题和三个广泛的主题领域。三个主题中每个主题最优先的两个主题如下：主题1：患者、家庭和志愿者——1）患者和护理人员所感知的护理结果及姑息治疗的影响，2）儿童的姑息治疗需求；主题2：医疗服务提供者——1）姑息治疗培训对护理和实践的影响，2）姑息治疗与抗逆转录病毒治疗服务的整合；主题3：卫生系统——1）微观、中观和宏观层面的姑息治疗需求评估，2）将姑息治疗纳入卫生系统和教育课程。
该研究确定的基于共识的姑息治疗主题可帮助研究人员通过关注这些优先领域来优化有限的研究能力。在研究议程确定并发表之后，非洲姑息治疗研究网络和其他合作伙伴将采取具体措施来帮助实施该议程。
