Department of Pediatrics, McMaster University, Hamilton, Ontario, Canada.
Am J Med Genet A. 2013 Sep;161A(9):2117-8. doi: 10.1002/ajmg.a.36114. Epub 2013 Jul 29.
An call for papers on the topic of narrative medicine as it pertains to the practice of clinical genetics, this article briefly reviews the tenets of narrative medicine and the ethical issues associated with publishing patients' and doctors' stories. It is an invitation to the readership of the American Journal of Medical Genetics to share its stories of caring for and living with genetic conditions in our new column called Frameshifts.
这是一篇关于叙事医学与临床遗传学实践相关主题的征稿启事,本文简要回顾了叙事医学的基本原则以及与发表患者和医生的故事相关的伦理问题。它邀请《美国医学遗传学杂志》的读者在我们新设立的栏目“移码突变”中分享他们在照顾和应对遗传疾病方面的故事。