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意大利“癫痫与驾驶”相关立法的伦理影响

Ethical implications of Italian legislation on 'epilepsy and driving'.

作者信息

Pinchi Vilma, Norelli Gian-Aristide, Bartolini Viola

机构信息

Department of Health Sciences -Section of Forensic Sciences, University of Florence, Institute of Legal Medicine, Florence, Italy.

出版信息

J Med Ethics. 2014 Aug;40(8):552-7. doi: 10.1136/medethics-2012-100863. Epub 2013 Jul 30.

DOI:10.1136/medethics-2012-100863
PMID:23900293
Abstract

The laws concerning driving licences and epilepsy in different countries are very diverse with regard to the criteria for issuance or renewal of licences, and also the methods of evaluating fitness. In 2011, a law was issued in Italy implementing the European directives on driving licences, including provisions for mandatory notification that a driver is epileptic. This was established regardless of the European rules that require compulsory notification only of patients. The Federation of Italian Boards of Physicians has made recommendations against mandated physician reporting, resulting in a current confusion between legal and ethical recommendations to medical doctors. The mandatory notification enacted by Italian law raises ethical concerns about disparities in access to care and possible violations of the right to confidentiality of patient information. Moreover, the law discussed here fails to emphasise the importance of physicians ensuring compliance by the patient, by sharing the correct information about the risks associated with illegal driving and by obtaining information from the patient through regular check-ups. An urgent revision of the law is required to implement the duty of the physician to provide information and to ensure that the rule about mandatory notification should be erased in favour of optional self-reporting by epileptics as the preferred way to notify the licensing authority. The implementation of these measures could correct the dichotomy between the law and the ethical recommendations for medical doctors and protect the rights of people with epilepsy as well as those of any other patients whose pathology or impairment could imply a risk to the community.

摘要

不同国家关于驾驶执照和癫痫的法律在驾照颁发或续签标准以及健康评估方法方面差异很大。2011年,意大利颁布了一项法律,实施欧洲关于驾驶执照的指令,其中包括要求驾驶员必须通报自己患有癫痫的规定。这一规定的制定无视了欧洲仅要求患者进行强制通报的规则。意大利医师委员会联合会已提出反对强制医生报告的建议,导致目前医生在法律建议和道德建议之间感到困惑。意大利法律规定的强制通报引发了对医疗服务获取不平等以及可能侵犯患者信息保密权的伦理担忧。此外,此处讨论的法律没有强调医生通过分享与非法驾驶相关的正确风险信息以及通过定期检查从患者处获取信息来确保患者遵守规定的重要性。迫切需要对该法律进行修订,以履行医生提供信息的职责,并确保应取消强制通报规则,转而支持癫痫患者选择自行报告,这是通知驾照颁发机构的首选方式。实施这些措施可以纠正法律与医生道德建议之间的二分法,并保护癫痫患者以及任何其他其病情或损伤可能对社区构成风险的患者的权利。

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Ethical implications of Italian legislation on 'epilepsy and driving'.意大利“癫痫与驾驶”相关立法的伦理影响
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