Department of Psychiatry, Technische Universität München, München, Germany.
J Geriatr Psychiatry Neurol. 2013 Dec;26(4):221-9. doi: 10.1177/0891988713498467. Epub 2013 Jul 31.
It is well known that burden among caregivers of patients with frontotemporal dementia (FTD) is high. However, little is known about the specific problems, the factors that contribute to caregiver burden, and the needs of the FTD caregivers-particularly those needs that are accessible by external support strategies.
We developed a standardized questionnaire that addressed burdens, problems, and the actual needs of FTD caregivers. A total of 94 caregivers were interviewed.
It appears that changes in the patients' behavior and in the interpersonal relations between caregivers and patients are associated with caregiver depression. The most important needs and requests of the caregivers included information and psychosocial support through educated staff, financial support as well as the education of medical staff about the disease.
Support strategies should focus on information and psychosocial support. Given the low prevalence of FTD, internet- and telephone-based strategies appear suitable.
众所周知，额颞叶痴呆（FTD）患者的照料者负担沉重。然而，对于照料者的具体问题、导致照料者负担加重的因素以及 FTD 照料者的需求（尤其是那些可以通过外部支持策略满足的需求）知之甚少。
我们开发了一个标准化问卷，该问卷涉及 FTD 照料者的负担、问题和实际需求。共有 94 名照料者接受了访谈。
患者行为的变化和照料者与患者之间人际关系的变化似乎与照料者的抑郁有关。照料者最重要的需求和请求包括通过有教育背景的工作人员提供信息和心理社会支持、经济支持以及对医务人员进行疾病教育。
支持策略应侧重于信息和心理社会支持。鉴于 FTD 的患病率较低，基于互联网和电话的策略似乎是合适的。
