Holenweg-Gross C, Newman C J, Faouzi M, Poirot-Hodgkinson I, Bérard C, Roulet-Perez E
Paediatric Neurology and Rehabilitation Unit, University Hospital, Lausanne, Switzerland.
Child Care Health Dev. 2014 Jul;40(4):525-32. doi: 10.1111/cch.12085. Epub 2013 Aug 1.
To estimate the prevalence of undernutrition among children with profound intellectual and multiple disabilities (PIMD) and to explore its influence on quality of life.
Seventy-two children with PIMD (47 male; 25 female; age range 2 to 15 years 4 months; mean age 8.6, SD 3.6) underwent an anthropometric assessment, including body weight, triceps skinfold thickness, segmental measures and recumbent length. Undernutrition was determined using tricipital skinfold percentile and z-scores of weight-for-height and height-for-age. The quality of life of each child was evaluated using the QUALIN questionnaire adapted for profoundly disabled children.
Twenty-five children (34.7%) were undernourished and seven (9.7%) were obese. Among undernourished children only eight (32 %) were receiving food supplements and two (8%) had a gastrostomy, of which one was still on a refeeding programme. On multivariate analysis, undernutrition was one of the independent predictors of lower quality of life.
Undernutrition remains a matter of concern in children with PIMD. There is a need to better train professionals in systematically assessing the nutritional status of profoundly disabled children in order to start nutritional management when necessary.
评估重度智力和多重残疾(PIMD)儿童的营养不良患病率,并探讨其对生活质量的影响。
72名PIMD儿童(47名男性;25名女性;年龄范围2至15岁4个月;平均年龄8.6岁,标准差3.6)接受了人体测量评估,包括体重、肱三头肌皮褶厚度、分段测量和卧位长度。使用肱三头肌皮褶百分位数以及身高别体重和年龄别身高的z评分来确定营养不良情况。使用适用于重度残疾儿童的QUALIN问卷评估每个儿童的生活质量。
25名儿童(34.7%)营养不良,7名(9.7%)肥胖。在营养不良的儿童中,只有8名(32%)接受食物补充剂,2名(8%)有胃造口术,其中1名仍在进行重新喂养计划。多因素分析显示,营养不良是生活质量较低的独立预测因素之一。
营养不良仍是PIMD儿童需要关注的问题。有必要对专业人员进行更好的培训,以便系统地评估重度残疾儿童的营养状况,从而在必要时启动营养管理。