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重度智力和多重残疾(PIMD)儿童的营养不良:其患病率及对生活质量的影响。

Undernutrition in children with profound intellectual and multiple disabilities (PIMD): its prevalence and influence on quality of life.

作者信息

Holenweg-Gross C, Newman C J, Faouzi M, Poirot-Hodgkinson I, Bérard C, Roulet-Perez E

机构信息

Paediatric Neurology and Rehabilitation Unit, University Hospital, Lausanne, Switzerland.

出版信息

Child Care Health Dev. 2014 Jul;40(4):525-32. doi: 10.1111/cch.12085. Epub 2013 Aug 1.

Abstract

BACKGROUND

To estimate the prevalence of undernutrition among children with profound intellectual and multiple disabilities (PIMD) and to explore its influence on quality of life.

METHODS

Seventy-two children with PIMD (47 male; 25 female; age range 2 to 15 years 4 months; mean age 8.6, SD 3.6) underwent an anthropometric assessment, including body weight, triceps skinfold thickness, segmental measures and recumbent length. Undernutrition was determined using tricipital skinfold percentile and z-scores of weight-for-height and height-for-age. The quality of life of each child was evaluated using the QUALIN questionnaire adapted for profoundly disabled children.

RESULTS

Twenty-five children (34.7%) were undernourished and seven (9.7%) were obese. Among undernourished children only eight (32 %) were receiving food supplements and two (8%) had a gastrostomy, of which one was still on a refeeding programme. On multivariate analysis, undernutrition was one of the independent predictors of lower quality of life.

CONCLUSION

Undernutrition remains a matter of concern in children with PIMD. There is a need to better train professionals in systematically assessing the nutritional status of profoundly disabled children in order to start nutritional management when necessary.

摘要

背景

评估重度智力和多重残疾(PIMD)儿童的营养不良患病率,并探讨其对生活质量的影响。

方法

72名PIMD儿童(47名男性;25名女性;年龄范围2至15岁4个月;平均年龄8.6岁,标准差3.6)接受了人体测量评估,包括体重、肱三头肌皮褶厚度、分段测量和卧位长度。使用肱三头肌皮褶百分位数以及身高别体重和年龄别身高的z评分来确定营养不良情况。使用适用于重度残疾儿童的QUALIN问卷评估每个儿童的生活质量。

结果

25名儿童(34.7%)营养不良,7名(9.7%)肥胖。在营养不良的儿童中,只有8名(32%)接受食物补充剂,2名(8%)有胃造口术,其中1名仍在进行重新喂养计划。多因素分析显示,营养不良是生活质量较低的独立预测因素之一。

结论

营养不良仍是PIMD儿童需要关注的问题。有必要对专业人员进行更好的培训,以便系统地评估重度残疾儿童的营养状况,从而在必要时启动营养管理。

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