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父母对重度智力和多重残疾儿童适应性体育活动的看法。

Parents' Perspectives on Adaptive Sports in Children with Profound Intellectual and Multiple Disabilities.

作者信息

Neyroud Marion C, Newman Christopher J

机构信息

Faculty of Biology and Medicine, University of Lausanne, 1011 Lausanne, Switzerland.

Paediatric Neurology and Neurorehabilitation Unit, Lausanne University Hospital and University of Lausanne, 1011 Lausanne, Switzerland.

出版信息

Children (Basel). 2021 Sep 16;8(9):815. doi: 10.3390/children8090815.

DOI:10.3390/children8090815
PMID:34572247
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8471413/
Abstract

Children with profound intellectual and multiple disabilities (PIMD) need adaptations to participate in sports and it is more difficult for them to access these activities. We investigated the effects of adaptive sports in children with PIMD as perceived by their parents. The parents answered a postal questionnaire exploring the effects of adaptive sports during the 3 days following an activity. The questionnaire explored twelve domains of children's daily lives, such as sleep and appetite. We calculated a composite score, including all of these domains, to assess whether the children globally benefited from adaptive sports. Of the families, 27/63 responded (participation 42.9%). Four domains improved after the sports activity in an important proportion of children (improvement in 64.0% of children for wellbeing, 57.6% for mood, 56.0% for comfort and 48.1% for sleep). Among the majority of children, the other eight domains remained mostly stable. Three quarters of parents reported a globally positive effect of adapted physical activities on their child. These findings support the further development and provision of adaptive sports for children with severe neurological impairments.

摘要

重度智力和多重残疾(PIMD)儿童需要进行适应性调整才能参与体育运动,而且他们参与这些活动的难度更大。我们调查了患有PIMD的儿童的父母所认为的适应性运动的效果。父母们回答了一份邮寄问卷,该问卷探讨了一项活动后3天内适应性运动的效果。问卷探讨了儿童日常生活的12个领域,如睡眠和食欲。我们计算了一个综合分数,包括所有这些领域,以评估儿童是否从适应性运动中整体受益。在这些家庭中,63个家庭中有27个做出了回应(回应率为42.9%)。在相当比例的儿童中,有四个领域在体育活动后得到了改善(幸福感方面64.0%的儿童有改善,情绪方面57.6%,舒适度方面56.0%,睡眠方面48.1%)。在大多数儿童中,其他八个领域大多保持稳定。四分之三的父母报告称适应性体育活动对他们的孩子有整体积极影响。这些发现支持为患有严重神经障碍的儿童进一步开展和提供适应性运动。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e824/8471413/2a5525149d1b/children-08-00815-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e824/8471413/5a363ed3d714/children-08-00815-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e824/8471413/2a5525149d1b/children-08-00815-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e824/8471413/5a363ed3d714/children-08-00815-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e824/8471413/2a5525149d1b/children-08-00815-g002.jpg

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