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湿疹教育项目:干预措施的制定与模式可行性

The Eczema Education Programme: intervention development and model feasibility.

作者信息

Jackson K, Ersser S J, Dennis H, Farasat H, More A

机构信息

St. John's Institute of Dermatology, Guy's and St. Thomas' NHS Foundation Trust, London, UK.

出版信息

J Eur Acad Dermatol Venereol. 2014 Jul;28(7):949-56. doi: 10.1111/jdv.12221. Epub 2013 Aug 2.

Abstract

BACKGROUND

The systematic support of parents of children with eczema is essential to their effective management; however, we have few models of support. This study examines the rationale, evidence base and development of a large-scale, structured, theory-based, nurse-led intervention, the 'Eczema Education Programme' (EEP), for parents of children with eczema.

OBJECTIVES

To outline development of the EEP, model of delivery, determine its feasibility and evaluate this based on service access and parental satisfaction data.

METHODS

Parent-child dyads meeting EEP referral criteria were recruited and demographic information recorded. A questionnaire survey of parental satisfaction was conducted 4 weeks post EEP; parental focus groups at 6 weeks provided comparative qualitative data. Descriptive statistics were derived from the questionnaire data using Predictive Analytics Software (PASW); content analysis was applied to focus group data.

RESULTS

A total of 356 parents attended the EEP during the evaluation period. Service access was achieved for those in a challenging population. Both survey data (n = 146 parents, 57%) and focus group data (n = 21) revealed a significant level of parental satisfaction with the programme.

CONCLUSIONS

It was feasible to provide the EEP as an adjunct to normal clinical care on a large scale, achieving a high level of patient/parent satisfaction and access within an urban area of multiple deprivation and high mobility. The intervention is transferable and the results are generalizable to other ethnically diverse child eczema populations within metropolitan areas in Britain. A multicentre RCT is required to test the effectiveness of this intervention on a larger scale.

摘要

背景

对湿疹患儿家长进行系统支持对有效管理患儿病情至关重要;然而,我们几乎没有支持模式。本研究探讨了一项针对湿疹患儿家长的大规模、结构化、基于理论且由护士主导的干预措施——“湿疹教育项目”(EEP)的基本原理、证据基础及发展情况。

目的

概述EEP的发展、实施模式,确定其可行性,并根据服务可及性和家长满意度数据进行评估。

方法

招募符合EEP转诊标准的亲子对,并记录人口统计学信息。在EEP结束4周后进行家长满意度问卷调查;6周时进行家长焦点小组讨论以提供比较性定性数据。使用预测分析软件(PASW)从问卷数据中得出描述性统计数据;对焦点小组数据进行内容分析。

结果

在评估期间,共有356名家长参加了EEP。为处于具有挑战性人群中的家长提供了服务。调查数据(n = 146名家长,57%)和焦点小组数据(n = 21)均显示家长对该项目的满意度较高。

结论

将EEP作为常规临床护理的辅助手段大规模提供是可行的,在一个多重贫困和高流动性的城市地区实现了较高水平的患者/家长满意度和服务可及性。该干预措施具有可转移性,结果可推广至英国大都市地区其他种族多样的儿童湿疹人群。需要进行多中心随机对照试验以更大规模地测试该干预措施的有效性。

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