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对生活的思考:脑损伤患者从医院过渡到家庭期间的经历

Reflections on life: experiences of individuals with brain injury during the transition from hospital to home.

作者信息

Nalder Emily, Fleming Jennifer, Cornwell Petrea, Shields Cassandra, Foster Michele

机构信息

School of Health and Rehabilitation Sciences, The University of Queensland , Brisbane , Australia .

出版信息

Brain Inj. 2013;27(11):1294-303. doi: 10.3109/02699052.2013.823560. Epub 2013 Aug 7.

DOI:10.3109/02699052.2013.823560
PMID:23924357
Abstract

BACKGROUND

The transition from hospital to home has been described as a distinct rehabilitation phase for individuals with brain injury. As most research to date has quantitatively measured outcomes or used a sample with mixed brain injury diagnoses, less is known about the experience of transition following traumatic brain injury (TBI).

AIMS

This study aimed to examine the lived experiences of individuals with TBI during the first 6 months following discharge from hospital.

DESIGN

A qualitative investigation was conducted with 16 individuals with TBI using semi-structured interviews.

DATA ANALYSIS

Data were analysed thematically using a Framework approach.

RESULTS

Transition experiences were characterized by a desire to return to normality and a changed perspective on life, by accepting change or altering priorities. The process of transition was dynamic as individuals experienced the dominant themes in cyclical patterns.

CONCLUSIONS

Research has highlighted the significant adjustment for individuals with TBI, particularly in relation to identity change, appraisal and coping. The themes of wanting normality and changing life perspective which were dominant in the current study highlight the significance of the transition phase in the process of adjustment and that transition is characterized by adapting to a new normality.

摘要

背景

从医院过渡到家庭被描述为脑损伤患者一个独特的康复阶段。由于迄今为止大多数研究都是定量测量结果或使用脑损伤诊断混合样本,对于创伤性脑损伤(TBI)后过渡的体验了解较少。

目的

本研究旨在调查TBI患者出院后头6个月的生活经历。

设计

对16名TBI患者进行了半结构化访谈的定性调查。

数据分析

采用框架法对数据进行主题分析。

结果

过渡经历的特点是渴望恢复正常以及对生活的看法发生改变,通过接受改变或调整优先事项来实现。过渡过程是动态的,因为个体以循环模式经历主要主题。

结论

研究强调了TBI患者的重大调整,特别是在身份变化、评估和应对方面。本研究中占主导地位的恢复正常和改变生活观念的主题突出了过渡阶段在调整过程中的重要性,并且过渡的特点是适应新的正常状态。

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