A qualitative exploration of how individuals reconstruct their sense of self following acquired brain injury in comparison with spinal cord injury.

PRIMARY OBJECTIVE

The present study aimed to investigate the specific ways in which individuals reconstruct their sense of self following injury to the nervous system, by comparing individuals with acquired brain injury (ABI) and individuals with spinal cord injury (SCI), two groups that have experienced a sudden-onset injury with life-changing repercussions.

RESEARCH DESIGN

Phenomenological qualitative research.

METHODS AND PROCEDURES

Nine individuals with ABI and 10 individuals with SCI took part in an interview exploring the ways in which individuals reconstruct their sense of self following injury. Data were analysed using interpretative thematic analysis.

MAIN OUTCOMES AND RESULTS

Findings showed similar themes identified within the interview data of the ABI and SCI groups. Both groups developed positive and negative self-narratives. Individuals employed strategies that facilitated the reconstruction of positive self-narratives. In addition, individuals described their sense of self as simultaneously continuous and changing.

DISCUSSION

Findings are discussed in relation to proposed models of self-reconstruction post-injury to the nervous system.