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重症监护病房幸存者出院后对日记的使用情况:一项质性描述性研究。

ICU survivors' utilisation of diaries post discharge: a qualitative descriptive study.

作者信息

Ewens Bev, Chapman Rose, Tulloch Alan, Hendricks Joyce M

机构信息

Edith Cowan University, Postgraduate Nursing, Building 21, Level 4, 270 Joondalup Drive Joondalup, Perth, WA 6027, Australia.

出版信息

Aust Crit Care. 2014 Feb;27(1):28-35. doi: 10.1016/j.aucc.2013.07.001. Epub 2013 Aug 9.

Abstract

BACKGROUND

A growing body of evidence has confirmed that intensive care unit survivors encounter myriad of physical and psychological complications during their recovery. The incidence of psychological morbidity in intensive care survivors is increasingly being recognised. The causes of psychological morbidity are multi-factorial but may be associated with a complete lack of, or delusional recall of events in intensive care. Intensive care unit diaries are an initiative designed to enable survivors to help restore factual memories and differentiate those from delusional.

PURPOSE

To explore survivors' and family members' perceptions and utilisation of diaries following discharge from hospital.

METHOD

A single centre qualitative descriptive study was undertaken in a general intensive care unit in Western Australia. Participants were surveyed 3, 6 and 12 months following discharge from hospital. Eighteen participants completed one or more surveys.

FINDINGS

Many of the participants who completed the surveys read their diaries but few made entries in them following discharge. Reading the diaries evoked mixed emotions for these participants; however they still viewed the diaries as a positive initiative in their recovery. Diaries enabled survivors to fill the memory gaps, make sense of their experience and reinforced the human connection when they were immersed in a technological environment.

CONCLUSION

Use of patient diaries was received positively by the participants in this study. Diaries are a simple, cost effective initiative which enabled survivors to piece together the time they had lost, concreted their experience in reality and enabled them to retain a connection with their loved ones whilst immersed in a technological environment.

摘要

背景

越来越多的证据证实,重症监护病房幸存者在康复过程中会遭遇众多身体和心理并发症。重症监护幸存者中心理疾病的发病率日益受到关注。心理疾病的成因是多方面的,但可能与在重症监护期间对事件完全没有记忆或存在妄想性回忆有关。重症监护病房日记是一项旨在帮助幸存者恢复真实记忆并区分真实记忆与妄想的举措。

目的

探讨幸存者及其家庭成员出院后对日记的看法和使用情况。

方法

在西澳大利亚的一个普通重症监护病房开展了一项单中心定性描述性研究。在参与者出院后的3个月、6个月和12个月进行调查。18名参与者完成了一项或多项调查。

结果

许多完成调查的参与者阅读了他们的日记,但出院后很少有人在日记中记录内容。阅读日记给这些参与者带来了复杂的情绪;然而,他们仍将日记视为康复过程中的一项积极举措。日记使幸存者能够填补记忆空白,理解自己的经历,并在他们置身于技术环境时加强人际联系。

结论

本研究中的参与者对患者日记的使用给予了积极评价。日记是一项简单且经济有效的举措,它能使幸存者拼凑起他们失去的时间,将他们的经历在现实中具体化,并使他们在置身于技术环境时仍能与亲人保持联系。

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