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《重症监护室的幸存者:康复故事》

Surviving ICU: Stories of recovery.

机构信息

School of Nursing and Midwifery, Edith Cowan University, Joondalup, WA, Australia.

Higher Education Division, Nursing, Midwifery and Social Science, CQUniversity Australia, Brisbane, Qld, Australia.

出版信息

J Adv Nurs. 2018 Jul;74(7):1554-1563. doi: 10.1111/jan.13556. Epub 2018 Apr 6.

Abstract

AIM

The aim of this study was to investigate stories of recovery through the lens of intensive care unit (ICU) survivors.

BACKGROUND

Survival from ICUs is increasing, as are associated physical and psychological complications. Despite the significant impact on survivors, there is inadequate support provision in Australia and world-wide for this population.

DESIGN

An interpretive biographical approach of intensive care survivors' experiences of recovery.

METHODS

Data were collected during 2014-2015 from diaries, face to face interviews, memos and field notes. Six participants diarized for 3 months commencing 2 months after hospital discharge. At 5 months, participants were interviewed about the content of their diaries and symbols and signifiers in them to create a shared meaning. Analysis of diaries and interviews were undertaken using two frameworks to identify themes throughout participants' stories and provides a unique portrait of recovery through their individual lens.

FINDINGS

Participants considered their lives had irreparably changed and yet felt unsupported by a healthcare system that had "saved" them. This view through their lens identified turmoil, which existed between their surface and inner worlds as they struggled to conform to what recovery "should be".

CONCLUSION

The novel biographical methods provided a safe and creative way to reveal survivors' inner thoughts and feelings. Participants' considered creating their stories supported their recovery process and in particular enabled them to reflect on their progress. Findings from this study may lead to increased awareness among health care providers about problems survivors face and improved support services more broadly, based on frameworks appropriate for this population.

摘要

目的

本研究旨在通过重症监护病房(ICU)幸存者的视角来探讨康复的故事。

背景

ICU 幸存者的存活率在增加,与之相关的身体和心理并发症也在增加。尽管这对幸存者产生了重大影响,但澳大利亚和全球范围内对这一人群的支持服务提供不足。

设计

对重症监护幸存者康复经历的解释性传记方法。

方法

数据于 2014 年至 2015 年期间通过日记、面对面访谈、备忘录和现场笔记收集。六名参与者在出院后 2 个月开始,连续 3 个月每天写日记。在 5 个月时,对参与者进行了有关日记内容以及日记中符号和标记的访谈,以形成共同的意义。对日记和访谈的分析使用了两个框架,以确定参与者故事中的主题,并通过他们的个人视角提供康复的独特写照。

结果

参与者认为他们的生活已经不可挽回地改变了,但他们感到自己没有得到医疗保健系统的支持,该系统“拯救”了他们。这种从他们的视角来看待问题的方式,发现了他们的表面和内心世界之间存在的混乱,因为他们努力适应所谓的“康复应该是什么样子”。

结论

这种新的传记方法为揭示幸存者的内心想法和感受提供了一种安全和创造性的方式。参与者认为创作自己的故事有助于他们的康复过程,特别是使他们能够反思自己的进展。本研究的结果可能会提高医疗保健提供者对幸存者所面临问题的认识,并更广泛地改善支持服务,这些服务是基于适合这一人群的框架。

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