Strong Epilepsy Center, Department of Neurology, University of Rochester School of Medicine and Dentistry, Rochester, NY, USA.
Epilepsy Behav. 2013 Oct;29(1):112-20. doi: 10.1016/j.yebeh.2013.05.039. Epub 2013 Aug 10.
Epilepsy surgery (ES) in pediatrics is safe and effective but can be underutilized. Possible barriers could be parental resistance and doctor inertia. We surveyed 138 parents of pediatric patients with epilepsy and found that 25.2% were opposed to this treatment. However, upon completing the questionnaire that contained factual information about ES, 50.4% of the responders stated that they had become more favorable vs. 3.3% more contrary and 46.3% unchanged. Parents of prepubescent patients were most receptive (p=0.0343) and more likely to shift to a more favorable attitude. Thus, pediatric neurologists should not hesitate to discuss ES as soon as indicated, providing all necessary information to increase acceptance. However, among 60 child neurologists surveyed, 60% did not fully comply with guidelines or follow accepted standards of practice, indicating that they may not be apt to provide proper parental guidance. We conclude that education of both practicing neurologists and parents is needed to facilitate the process.
儿科癫痫手术(ES)安全有效,但可能未被充分利用。可能的障碍包括家长的抵触和医生的惯性。我们调查了 138 名患有癫痫的儿科患者的家长,发现其中 25.2% 反对这种治疗方法。然而,在完成包含 ES 事实信息的问卷后,50.4%的回答者表示他们对此治疗更有好感,而 3.3%的回答者则更反对,46.3%的回答者保持不变。青春期前患者的家长最容易接受(p=0.0343),并且更有可能转变为更有利的态度。因此,儿科神经科医生一旦有指征,就不应犹豫讨论 ES,提供所有必要的信息以提高接受度。然而,在接受调查的 60 名儿童神经科医生中,60%没有完全遵守指南或遵循公认的实践标准,这表明他们可能不善于提供适当的家长指导。我们的结论是,需要对执业神经科医生和家长进行教育,以促进这一过程。