Mattsson Janet Yvonne, Arman Maria, Castren Maaret, Forsner Maria
Karolinska Institutet, Sweden
Karolinska Institutet, Sweden.
J Child Health Care. 2014 Dec;18(4):336-45. doi: 10.1177/1367493513496667. Epub 2013 Aug 12.
When children are critically ill, parents still strive to be present and participate in the care of their child. Pediatric intensive care differs from other realms of pediatric care as the nature of care is technically advanced and rather obstructing than encouraging parental involvement or closeness, either physically or emotionally, with the critically ill child. The aim of this study was to elucidate the meaning of caring in the pediatric intensive care unit from the perspective of parents. The design of this study followed Benner's interpretive phenomenological method. Eleven parents of seven children participated in observations and interviews. The following aspects of caring were illustrated in the themes arising from the findings: being a bridge to the child on the edge, building a sheltered atmosphere, meeting the child's needs, and adapting the environment for family life. The overall impression is that the phenomenon of caring is experienced exclusively when it is directed toward the exposed child. The conclusion drawn is that caring is present when providing expert physical care combined with fulfilling emotional needs and supporting continuing daily parental care for the child in an inviting environment.
当孩子危在旦夕时，父母仍会努力陪伴在旁并参与对孩子的照料。儿科重症监护与儿科护理的其他领域有所不同，因为护理的性质在技术上较为先进，且在身体或情感方面，非但不鼓励父母参与或亲近重症患儿，反而起到阻碍作用。本研究的目的是从父母的角度阐明儿科重症监护病房中护理的意义。本研究的设计遵循本纳的解释现象学方法。七个孩子的十一位家长参与了观察和访谈。研究结果所产生的主题中阐述了护理的以下几个方面：成为处于边缘状态的孩子的桥梁、营造庇护性的氛围、满足孩子的需求以及为家庭生活调适环境。总体印象是，只有当护理针对暴露无遗的孩子时，才会体验到护理这一现象。得出的结论是，在提供专业身体护理的同时，满足情感需求并在宜人的环境中支持父母持续进行日常的孩子照料，此时护理便得以体现。
