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康复故事:造血干细胞移植幸存者癌症生存叙事中的叙事特征与心理健康

Healing stories: narrative characteristics in cancer survivorship narratives and psychological health among hematopoietic stem cell transplant survivors.

作者信息

Benish-Weisman Maya, Wu Lisa M, Weinberger-Litman Sarah L, Redd William H, Duhamel Katherine N, Rini Christine

机构信息

University of Haifa,Haifa,Israel.

Mount Sinai School of Medicine,New York, New York.

出版信息

Palliat Support Care. 2014 Aug;12(4):261-7. doi: 10.1017/S1478951513000205. Epub 2013 Aug 14.

DOI:10.1017/S1478951513000205
PMID:23942197
Abstract

OBJECTIVES

Survivors of hematopoietic stem cell transplant (HSCT) have experienced a life threatening and potentially traumatic illness and treatment that make them vulnerable to long lasting negative psychological outcomes, including anxiety and depression. Nevertheless, studies show that overcoming cancer and its treatment can present an opportunity for personal growth and psychological health (reduced symptoms of anxiety and depression and high levels of emotional well-being) through resilience. However, research has not yet clarified what differentiates HSCT survivors who experience psychological growth from those who do not. By analyzing recovery narratives, we examined whether HSCT survivors' interpretation of their experiences helps explain differences in their post-treatment psychological health.

METHODS

Guided by narrative psychology theory, we analyzed the narratives of 23 HSCT survivors writing about their experience of cancer treatment. Psychological health was measured by: (1) emotional well-being subscale part of the Functional Assessment of Cancer Therapy Bone Marrow Transplant (FACT-BMT), (2) depression, and (3) anxiety subscales of the Brief Symptom Inventory.

RESULTS

Findings revealed a positive relation between psychological health and a greater number of redemption episodes (going from an emotionally negative life event to an emotionally positive one) as well as fewer negative emotional expressions. SIGNIFICANCE OF THE RESULTS: Theoretical and practical implications of these findings are discussed, showing how narratives can inform interventions to assist cancer survivors with their psychological recovery.

摘要

目的

造血干细胞移植(HSCT)幸存者经历了危及生命且可能造成创伤的疾病与治疗,这使他们易出现长期负面心理后果,包括焦虑和抑郁。然而,研究表明,战胜癌症及其治疗过程可以通过恢复力为个人成长和心理健康(减轻焦虑和抑郁症状并提升情绪幸福感)带来契机。然而,研究尚未阐明经历心理成长的HSCT幸存者与未经历者之间的差异所在。通过分析康复叙事,我们探究了HSCT幸存者对自身经历的解读是否有助于解释其治疗后心理健康的差异。

方法

在叙事心理学理论的指导下,我们分析了23名HSCT幸存者讲述其癌症治疗经历的叙事。心理健康通过以下方式衡量:(1)癌症治疗功能评估骨髓移植版(FACT-BMT)中的情绪幸福感分量表,(2)抑郁,以及(3)简明症状量表中的焦虑分量表。

结果

研究结果显示心理健康与更多的救赎情节(从情绪消极的生活事件转变为情绪积极的事件)以及更少的负面情绪表达之间存在正相关关系。

结果的意义

讨论了这些发现的理论和实践意义,展示了叙事如何为帮助癌症幸存者心理康复的干预措施提供信息。

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