BIOMED Biomedical Research Institute, Hasselt University, Diepenbeek, Belgium.
NeuroRehabilitation. 2013;33(3):439-48. doi: 10.3233/NRE-130975.
Persons with MS (pwMS) in the community show reduced physical activity while studies demonstrated beneficial effects of exercise therapy in supervised settings.
This study investigated, in pwMS living in the community, the effects of a 1-day education program about exercises and sports, on physical activity behavior and related outcome measures as self-efficacy, perceived walking ability, fatigue, perceived impact of MS and quality of life.
PwMS attended an education day with theoretical and practical sessions that was organized by the Flemish MS Society and professional exercise experts. Forty-two participants immediately completed questionnaires as well as after three and six months. Overall disability and physical activity level were measured using PDSS (patient determined disease steps) and PASIPD (Physical Activity Scale for Individuals with Physical Disabilities) respectively. Other outcomes were the ESES, MSWS-12, MFIS, MSIS-29 and SF-36. Analyses of variance were performed in groups distinguished by self-reported disability level (PDDS ≤1; n = 24 and PDSS >1; n = 18).
Groups differed significantly for perceived walking ability (PDDS,MSWS-12) and physical related-domains of MSIS-29 and SF-36, but not PASIPD. A trend towards significant group*time interaction effect was found for the PASIPD indicating, at 3 and 6 months, increased physical activity in the subgroup PDDS ≤1. For the MSIS-29, a significant time effect was found with reduced impact being largest for the more disabled group at 6 months. No changes were found in other outcome measures.
An one-day education program had, depending on perceived disability level, some long-standing effects on physical activity and perceived impact of MS.
社区中的多发性硬化症患者（pwMS）的身体活动减少，而研究表明，在监督环境下进行运动疗法有益。
本研究调查了生活在社区中的多发性硬化症患者（pwMS）参加 1 天的运动和体育教育计划对身体活动行为和相关结果测量的影响，如自我效能感、感知行走能力、疲劳、多发性硬化症的感知影响和生活质量。
pwMS 参加了由佛兰芒多发性硬化症协会和专业运动专家组织的理论和实践课程的教育日。42 名参与者立即完成了问卷，然后在 3 个月和 6 个月后再次完成。总体残疾程度和身体活动水平分别使用 PDSS（患者确定疾病阶段）和 PASIPD（身体残疾个体活动量表）进行测量。其他结果包括 ESES、MSWS-12、MFIS、MSIS-29 和 SF-36。使用方差分析（ANOVA）对根据自我报告的残疾程度（PDDS≤1；n=24 和 PDSS>1；n=18）分组的结果进行了分析。
两组在感知行走能力（PDDS，MSWS-12）和身体相关的 MSIS-29 和 SF-36 领域存在显著差异，但 PASIPD 没有差异。在 PASIPD 上发现了显著的组*时间交互作用趋势，表明在 3 个月和 6 个月时，PDDS≤1 的亚组的身体活动增加。对于 MSIS-29，发现了显著的时间效应，6 个月时，残疾程度较高的组的影响降低幅度最大。其他结果测量没有变化。
为期一天的教育计划，根据感知的残疾程度，对身体活动和多发性硬化症的感知影响有一些长期的影响。
