Sulafa K M Ali
University of Khartoum, Faculty of Medicine, Department of Paediatrics and Child Health, P.O. Box 102, Khartoum Erkaweit, Sudan.
J Saudi Heart Assoc. 2010 Jul;22(3):137-41. doi: 10.1016/j.jsha.2010.04.014. Epub 2010 May 11.
Establishing paediatric cardiology service in a country with limited resources like Sudan is a challenging task. A paediatric cardiac team was formed then the services in different disciplines were gradually established. Echocardiography (echo) clinics were founded in tertiary and peripheral hospitals. Cardiac catheterization (cath) was established at the Sudan Heart Centre (SHC) in 2004 and over 400 procedures had been performed including interventional catheterization like pulmonary valve dilatation, patent ductus arteriosus and atrial septal defect device closure. Congenital heart surgery started in 2001, currently 200 cases are done each year including closed procedures as well as open heart procedures for patients weighing more than 8 kg. Cardiology-cardiac surgery as well as adult congenital heart disease meetings were held and contributed positively to the services. The cardiology-cardiac surgery scientific club meeting was founded as a forum for academic discussions. A fellowship program was established in 2004 and included seven candidates trained in paediatric cardiology and intensive care. Two training courses had been established: congenital heart disease echo and paediatric electrocardiogram interpretation. Links with regional and international cardiac centres had important roles in consolidating our program. Significant obstacles face our service due to the small number of trained personnel, high cost of procedures, the lack of regular supplies and lack of cardiac intensive care facilities for young infants. Bridging the huge gap needs extensive official as well as non-governmental efforts, training more staff, supporting families and collaboration with regional and international centres.
在像苏丹这样资源有限的国家建立儿科心脏病服务是一项具有挑战性的任务。当时组建了一个儿科心脏团队,然后逐步建立了不同学科的服务。在三级医院和周边医院设立了超声心动图(超声)诊所。2004年在苏丹心脏中心(SHC)建立了心导管插入术(心导管),已进行了400多次手术,包括介入性心导管手术,如肺动脉瓣扩张、动脉导管未闭和房间隔缺损封堵术。先天性心脏病手术始于2001年,目前每年完成200例手术,包括对体重超过8公斤的患者进行的闭式手术以及心脏直视手术。举办了心脏病学-心脏外科学以及成人先天性心脏病会议,对服务起到了积极的促进作用。成立了心脏病学-心脏外科学术俱乐部会议作为学术讨论的论坛。2004年设立了一个 fellowship 项目,包括7名接受儿科心脏病学和重症监护培训的候选人。开设了两门培训课程:先天性心脏病超声和儿科心电图解读。与区域和国际心脏中心的联系在巩固我们的项目中发挥了重要作用。由于训练有素的人员数量少、手术成本高、缺乏定期供应以及缺乏针对幼儿的心脏重症监护设施,我们的服务面临重大障碍。弥合这一巨大差距需要官方以及非政府的广泛努力,培训更多工作人员,支持家庭,并与区域和国际中心合作。