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泰国国立法政大学医院慢性病患儿的健康相关生活质量

Health-related quality of life in children with chronic diseases at Thammasat University Hospital.

作者信息

Sritipsukho Paskorn, Poomsitong Jureebhorn

机构信息

Department of Pediatrics, Faculty of Medicine, Thammasat University, Pathumthani, Thailand.

出版信息

J Med Assoc Thai. 2012 Jan;95 Suppl 1:S8-12.

Abstract

OBJECTIVE

The present study aimed to examine the level of health related quality of life in pediatric patients with common chronic diseases who sought care at Thammasat University Hospital.

MATERIAL AND METHOD

Cross sectional study in 134 patients aged 2-18, who visited department of pediatrics at Thammasat University Hospital were performed. Health related quality of life was evaluated using Thai version of Pediatric Quality of Life Inventory 4.0 Generic Core Scales (PedsQL 4.0). For children aged 2-4 and 5-18, the questionnaire was answered by their guardians and by themselves and their guardians, respectively. The present study evaluated health related quality of life in four aspects: physical, emotional, social and school functioning. Points were then pooled and divided into three categories, namely total, physical health summary and psychosocial health summary scale scores. Each category could have a maximum score of 100.

RESULTS

The mean total scale score from the questionnaire answering by guardians was highest in allergic rhinitis (77.6 +/- 12.1). Physical and psychosocial scale scores were 81.7 +/- 16.8 and 75.4 +/- 12.5. Total scale scores in asthma, chronic renal diseases, leukemia and lymphoma, and congenital heart defects were 73.8 +/- 14.7, 73.5 +/- 18.9, 64.5 +/- 14.0 and 76.2 +/- 19.6, respectively Cerebral palsy had the lowest total scale score of 27.1 +/- 16.7 with physical and psychosocial scale scores of 16.9 +/- 7.5 and 33.0 +/- 23.2, respectively. When patients answered the questionnaire by themselves, it was found that allergic rhinitis had the highest total scale score (79.5 +/- 13.2). Total scale scores in asthma, chronic renal diseases, leukemia and lymphoma, and heart diseases were 75.2 +/- 16.4, 76.3 +/- 16.2, 70.5 +/- 9.4 and 72.4 +/- 22.7, respectively. Cerebral palsy had the lowest scale scores in all categories, with total scale score of 46.1 +/- 14.6, physical scale score of 23.4 +/- 6.6 and psychosocial scale score of 58.3 +/- 18.8.

CONCLUSION

Among chronic diseases, cerebral palsy has the lowest health related quality of life scale scores in all categories, namely total, physical and psychosocial health summary.

摘要

目的

本研究旨在调查在泰国法政大学医院就诊的患有常见慢性病的儿科患者的健康相关生活质量水平。

材料与方法

对134名年龄在2至18岁之间、前往泰国法政大学医院儿科就诊的患者进行横断面研究。使用泰语版的儿童生活质量量表4.0通用核心量表(PedsQL 4.0)评估健康相关生活质量。对于2至4岁以及5至18岁的儿童,问卷分别由其监护人以及他们自己和监护人回答。本研究从身体、情感、社交和学校功能四个方面评估健康相关生活质量。然后将分数汇总并分为三类,即总分、身体健康总结和心理社会健康总结量表分数。每个类别最高分为100分。

结果

监护人回答问卷的平均总分在过敏性鼻炎患者中最高(77.6 +/- 12.1)。身体和心理社会量表分数分别为81.7 +/- 16.8和75.4 +/- 12.5。哮喘、慢性肾病、白血病和淋巴瘤以及先天性心脏病患者的总分分别为73.8 +/- 14.7、73.5 +/- 18.9、64.5 +/- 14.0和76.2 +/- 19.6。脑瘫患者的总分最低,为27.1 +/- 16.7,身体和心理社会量表分数分别为16.9 +/- 7.5和33.0 +/- 23.2。当患者自己回答问卷时,发现过敏性鼻炎的总分最高(79.5 +/- 13.2)。哮喘、慢性肾病、白血病和淋巴瘤以及心脏病患者的总分分别为75.2 +/- 16.4、76.3 +/- 16.2、70.5 +/- 9.4和72.4 +/- 22.7。脑瘫在所有类别中的量表分数最低,总分46.1 +/- 14.6,身体量表分数23.4 +/- 6.6,心理社会量表分数58.3 +/- 18.8。

结论

在所有慢性病中,脑瘫在总分、身体健康总结和心理社会健康总结等所有类别中的健康相关生活质量量表分数最低。

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