Cedano Simone, Bettencourt Ana Rita de Cássia, Traldi Fabiana, Machado Maria Christina Lombardi Oliveira, Belasco Angélica Gonçalves Silva
Escola Paulista de Enfermagem, Universidade Federal de São Paulo, São Paulo, SP, Brazil.
Rev Lat Am Enfermagem. 2013 Jul-Aug;21(4):860-7. doi: 10.1590/S0104-11692013000400005.
to assess the quality of life and burden of caregivers to Chronic Obstructive Pulmonary Disease patients on Long-Term Oxygen Therapy and to investigate the factors influencing this burden.
this is an analytical, cross-sectional study of 80 persons with Chronic Obstructive Pulmonary Disease on Long-Term Oxygen Therapy who used the specialized outpatient center of the Federal University of São Paulo, and their carers. The following instruments were used: Medical Outcomes Studies 36 (SF-36), Caregiver Burden Scale (CBS) and the Katz Index, along with socio-demographic and clinical variables.
the most compromised scores on the carers' quality of life questionnaire were for Vitality and Mental Health. On the Caregiver Burden Scale, the domain which created the greatest burden for carers was the Environment. With the exception of Emotional Involvement, all the domains of quality of life were affected negatively by the domains of caregiver burden.
it was shown that carers' quality of life was compromised and that they were overburdened with care tasks, confirming that assisting persons with Chronic Obstructive Pulmonary Disease is an important element in carers' quality of life.
评估长期氧疗的慢性阻塞性肺疾病患者的生活质量及照顾者负担，并探究影响该负担的因素。
这是一项分析性横断面研究，研究对象为80名在圣保罗联邦大学专科门诊接受长期氧疗的慢性阻塞性肺疾病患者及其照顾者。使用了以下工具：医学结局研究简表36项健康调查（SF-36）、照顾者负担量表（CBS）和卡茨指数，同时收集了社会人口学和临床变量。
照顾者生活质量问卷中受影响最大的得分是活力和心理健康方面。在照顾者负担量表中，给照顾者造成最大负担的领域是环境。除情感投入外，生活质量的所有领域均受到照顾者负担领域的负面影响。
研究表明照顾者的生活质量受到损害，且他们承担着过重的照顾任务，证实了照顾慢性阻塞性肺疾病患者是照顾者生活质量的一个重要因素。
