Kaasalainen Sharon, Strachan Patricia H, Heckman George A, D'Elia Teresa, McKelvie Robert S, McAiney Carrie, Stolee Paul, van der Horst Mary Lou, Kelley Mary Lou, Demers Catherine
Associate Professor, Faculty of Health Sciences, McMaster University, Hamilton, Ontario, Canada.
Int J Palliat Nurs. 2013 Aug;19(8):375-82. doi: 10.12968/ijpn.2013.19.8.375.
The purpose of this study was to explore the experiences of long-term care (LTC) residents living and dying with heart failure (HF)and their family members. An exploratory descriptive design was used to collect data from seven LTC residents and seven family members. The data was analysed using thematic content analysis. The main themes that emerged from the data were: limited understanding of the HF diagnosis, living with restrictions and other comorbidities, making decisions about transitioning to end-of-life care, and learning and negotiating the lines of communication. Residents and family members communicated with many health-care providers about managing the HF symptoms but most often worked through the nurse when problems arose or decisions about care needed to be made. The findings from this study contribute to our understanding of residents' and family members' experiences in managing residents' HF in LTC.
本研究的目的是探究长期护理（LTC）机构中患有心力衰竭（HF）的居民及其家庭成员在生存与死亡过程中的经历。采用探索性描述性设计，从7名长期护理机构居民和7名家庭成员中收集数据。运用主题内容分析法对数据进行分析。数据中出现的主要主题包括：对心力衰竭诊断的理解有限、在限制和其他合并症的情况下生活、做出向临终护理过渡的决定，以及学习和协商沟通方式。居民和家庭成员就心力衰竭症状的管理与许多医疗服务提供者进行沟通，但出现问题或需要做出护理决定时，大多通过护士来解决。本研究的结果有助于我们了解长期护理机构中居民及其家庭成员在管理居民心力衰竭方面的经历。
