Hedlund Åsa, Nordström Tina, Kristofferzon Marja-Leena, Nilsson Annika
Department of Health and Caring Sciences University of Gävle Gävle Sweden.
Department of Public Health and Caring Sciences,Section of Caring Sciences Uppsala University Uppsala Sweden.
Nurs Open. 2019 Aug 22;6(4):1580-1588. doi: 10.1002/nop2.363. eCollection 2019 Oct.
The aim was to describe individuals' experiences of living with long-term illness.
A qualitative approach with a descriptive design was used. Semi-structured interviews were conducted with 16 persons (50-80 years). They were also asked to self-rate their perceptions of their current health status and confidence in their ability to cope with everyday life.
One main theme was identified: new insights and access to resources change the perspective on life. Personal characteristics and support from others were advantageous in finding ways to deal with limitations related to the illness. Most of the persons experienced a changed approach to life, in that they now valued life more than they had before. However, some persons also experienced lost values and found it difficult to accept medications. The persons rated their current health status as slightly above average, but their confidence in their ability to cope with everyday life as high.
本研究旨在描述长期患病者的生活经历。
采用描述性设计的定性研究方法。对16名年龄在50至80岁之间的人进行了半结构化访谈。还要求他们对自己当前的健康状况以及应对日常生活能力的信心进行自我评估。
确定了一个主要主题：新的见解和资源获取改变了生活视角。个人特质和他人的支持有利于找到应对与疾病相关限制的方法。大多数人经历了生活方式的改变，即他们现在比以前更珍惜生命。然而，一些人也经历了价值观的丧失，并且难以接受药物治疗。这些人将自己当前的健康状况评为略高于平均水平，但对自己应对日常生活能力的信心很高。
