台湾地区的阿尔茨海默病登记：患者和知情人。
Registration of Alzheimer's disease in Taiwan: patient and informant.
机构信息
1Department of Neurology, Changhua Christian Hospital, Changhua, Taiwan.
出版信息
Am J Alzheimers Dis Other Demen. 2014 Feb;29(1):18-22. doi: 10.1177/1533317513504818. Epub 2013 Oct 1.
Abstract
BACKGROUND
To obtain updated data of patients with Alzheimer's disease (AD) and their informants in Taiwan with the aim of fostering and supporting collaborative research.
METHODS
In total, 691 patients with the diagnosis of AD were recruited at 6 sites in Taiwan. The Uniform Data Set (UDS; form A) was administrated.
RESULTS
The mean age of the patients with AD was 79.3 ± 7.7 years and the mean age of informants was 57.5 ± 13.7 years. In all, 69% of the informants lived with patients and 77% of patients lived with spouse, partner, or children; 11% had 1 sibling with dementia, 1.8% had 2 siblings with dementia, and 0.5% had 3 or more siblings with dementia.
CONCLUSION
We have reported the updated status of AD in Taiwan through a UDS that will foster future collaboration among countries using UDS. The updated information of patients with AD and their informants will direct the future care of AD in Taiwan.
摘要
背景
为了获取台湾地区阿尔茨海默病（AD）患者及其家属的最新数据，以促进和支持合作研究。
方法
在台湾的 6 个地点共招募了 691 名 AD 患者。采用统一数据采集表（UDS；表 A）。
结果
AD 患者的平均年龄为 79.3 ± 7.7 岁，家属的平均年龄为 57.5 ± 13.7 岁。家属中，69%与患者同住，77%与配偶、伴侣或子女同住；11%有 1 个患有痴呆症的兄弟姐妹，1.8%有 2 个患有痴呆症的兄弟姐妹，0.5%有 3 个或更多患有痴呆症的兄弟姐妹。
结论
我们通过 UDS 报告了台湾地区 AD 的最新情况，这将促进使用 UDS 的国家之间的未来合作。AD 患者及其家属的最新信息将指导台湾地区 AD 的未来护理方向。
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