我可以获取自己的个人基因组信息吗？英国目前的法律状况。
Can I access my personal genome? The current legal position in the UK.
作者信息
Kaye Jane, Kanellopoulou Nadja, Hawkins Naomi, Gowans Heather, Curren Liam, Melham Karen
机构信息
*Department of Population Health, University of Oxford, Oxford, UK.
出版信息
Med Law Rev. 2014 Winter;22(1):64-86. doi: 10.1093/medlaw/fwt027. Epub 2013 Oct 17.
Abstract
This paper discusses the nature of genomic information, and the moral arguments in support of an individual's right to access it. It analyses the legal avenues an individual might take to access their sequence information. The authors describe the policy implications in this area and conclude that, for now, the law appears to strike an appropriate balance, but new policy will need to be developed to address this issue.
摘要
本文讨论了基因组信息的性质，以及支持个人获取该信息权利的道德论据。它分析了个人获取其序列信息可能采取的法律途径。作者描述了这一领域的政策影响，并得出结论，目前法律似乎达成了适当的平衡，但需要制定新的政策来解决这一问题。
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