欧洲罕见病和孤儿药的伦理、法律和社会影响：布罗歇尔研讨会的会议报告。
Ethical, legal and social implications of rare diseases and orphan drugs in Europe: meeting report of a Brocher symposium.
机构信息
KU Leuven Department of Pharmaceutical and Pharmacological Sciences, Herestraat 49, PO Box 521, 3000 Leuven, Belgium.
出版信息
Expert Rev Pharmacoecon Outcomes Res. 2013 Oct;13(5):571-3. doi: 10.1586/14737167.2013.832626.
Ethical, legal and social implications of rare diseases and orphan drugs in Europe (Brocher symposium) Geneva, Switzerland 18-19 April 2013 As part of the Scientific Program of the Fondation Brocher, a two-day symposium on orphan drugs and rare diseases was held on the shores of Lac Léman in Geneva. Specific focus was on the ethical, legal and social implications of rare diseases and orphan drugs in Europe. The symposium gathered about 30 international stakeholders and experts, representing different scientific disciplines, the pharmaceutical industry and patient representatives.
欧洲罕见病和孤儿药的伦理、法律和社会影响（Brocher 研讨会） 瑞士日内瓦，2013 年 4 月 18-19 日 作为 Brocher 基金会科学计划的一部分，在日内瓦莱芒湖畔举行了为期两天的孤儿药和罕见病研讨会。研讨会的重点是欧洲罕见病和孤儿药的伦理、法律和社会影响。研讨会聚集了约 30 名来自不同科学领域、制药行业和患者代表的国际利益相关者和专家。
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