Lehna Carlee
(Associate Professor), School of Nursing, University of Louisville, Louisville, Kentucky.
J Am Assoc Nurse Pract. 2013 Oct;25(10):557-562. doi: 10.1111/1745-7599.12007. Epub 2013 Feb 19.
To understand the stigma perspective of siblings of children with major burn injury.
A mixed method, qualitative-dominant study was conducted. The life story method was used for the qualitative portion. Only narratives from those family members describing the sibling's appearance change were used (N = 18 participants).
Stigma experienced by siblings was first described by parents or noninjured siblings; they described how the sibling with changed appearance was stared at, ridiculed, or teased when they entered a new social situation. Only when specifically asked did the children with burn injury talk about their problems, saying, "This always happens when I go somewhere new."
Children with changed appearance focused on normalizing their lives in a positive way. Oftentimes, it was a parent or noninjured sibling who would describe manifestations of stigma and ways they tried to protect the child with burn injury.
了解重度烧伤儿童兄弟姐妹的耻辱感认知。
开展了一项以定性为主的混合方法研究。定性部分采用了生活故事法。仅使用了那些描述兄弟姐妹外貌变化的家庭成员的叙述（N = 18名参与者）。
兄弟姐妹所经历的耻辱感首先由父母或未受伤的兄弟姐妹描述；他们讲述了外貌有变化的兄弟姐妹进入新的社交场合时是如何被盯着看、嘲笑或戏弄的。只有在被特别询问时，烧伤儿童才会谈论他们的问题，说：“我每次去新地方都会这样。”
外貌有变化的儿童专注于以积极的方式使他们的生活正常化。通常，是父母或未受伤的兄弟姐妹会描述耻辱感的表现以及他们试图保护烧伤儿童的方式。
