Lehna Carlee
University of Louisville School of Nursing, Louisville, KY, USA.
Pediatr Nurs. 2010 Sep-Oct;36(5):245-51; quiz 252.
The purpose of this research project was to understand, primarily from the sibling perspective, the effect of a child's major burn injury on his or her sibling. A mixed method qualitative dominant design was implemented using the life story method for the qualitative portion. Additionally, the Sibling Relationship Questionnaire -Revised (SRQ-R) was used as a structured interview guide and for calculating scoring data to explore sibling relationship factors of warmth/closeness, rivalry, conflict, and relative status/power. Participants from 22 family cases (one or multiple family members) and 40 individuals were interviewed. To capture impact on the family over time, interviews began a minimum of two years post-burn. The central thematic pattern for the sibling relationship in families having a child with a major burn injury was that of normalization. Two components of normalization were described: areas of normalization and the process of adjustment. Areas of normalization were found in play and other activities, in school and work, and in family relations with siblings. The process of adjustment was varied and often gradual, involved school and work re-entry, and in some instances, seemed to change life perspective. Clinical implications in providing family-centered care can focus on promoting normalization by assessing and supporting siblings who may only be occasionally seen in the hospital or clinic.
本研究项目的目的主要是从兄弟姐妹的角度了解儿童严重烧伤对其兄弟姐妹的影响。采用了混合方法，以质性研究为主导设计，质性部分运用了生命故事法。此外，修订后的《兄弟姐妹关系问卷》（SRQ-R）被用作结构化访谈指南，并用于计算评分数据，以探究温暖/亲密、竞争、冲突以及相对地位/权力等兄弟姐妹关系因素。对来自22个家庭案例（一个或多个家庭成员）的40名个体进行了访谈。为了了解烧伤后一段时间内对家庭的影响，访谈在烧伤后至少两年开始。有严重烧伤儿童的家庭中，兄弟姐妹关系的核心主题模式是正常化。正常化包括两个方面：正常化的领域和调整过程。在玩耍及其他活动、学校和工作以及与兄弟姐妹的家庭关系中都发现了正常化的领域。调整过程各不相同，且往往是渐进的，涉及重返学校和工作，在某些情况下，似乎还改变了生活观念。在提供以家庭为中心的护理时，临床意义可以集中在通过评估和支持那些可能只是偶尔在医院或诊所出现的兄弟姐妹来促进正常化。
