Roberts Rachel M
From the School of Psychology, University of Adelaide, Adelaide, Australia.
J Craniofac Surg. 2014 Jan;25(1):77-81. doi: 10.1097/SCS.0b013e3182a2e005.
The primary goal of this study was to establish the level of perceived discrimination experienced by adults with congenital craniofacial conditions in Australia and to examine predictors of discrimination. Specifically, this study tested whether social support mediates the relationship between discrimination and health. Adults (n = 93) who had been treated at the Australian Craniofacial Unit, Women's and Children's Hospital, Adelaide for congenital craniofacial conditions (not including cleft lip and/or palate) completed questionnaires examining satisfaction with life, quality of life, anxiety and depression, self-esteem, satisfaction with social support, and satisfaction with appearance. A substantial minority of adults with congenital craniofacial conditions reported that they experience discrimination almost every day in a range of areas. Higher reports of discrimination were related to older age, being male, and less education. Other factors related to higher discrimination included lower levels of satisfaction with life, self-esteem, satisfaction with appearance and mental quality of life, as well as higher levels of anxiety and depression. Social support partially mediated the relationship between discrimination and mental health outcomes. The current study shows that discrimination experiences continue into adulthood confirming the importance of ensuring patients are well supported both by psychosocial services as well as within their own social support networks.
本研究的主要目标是确定澳大利亚患有先天性颅面疾病的成年人所感受到的歧视程度，并研究歧视的预测因素。具体而言，本研究测试了社会支持是否在歧视与健康之间的关系中起中介作用。在阿德莱德妇女儿童医院澳大利亚颅面科接受过先天性颅面疾病（不包括唇裂和/或腭裂）治疗的93名成年人完成了问卷调查，内容涉及生活满意度、生活质量、焦虑和抑郁、自尊、对社会支持的满意度以及对外貌的满意度。相当一部分患有先天性颅面疾病的成年人报告称，他们几乎在一系列领域每天都会遭受歧视。更高的歧视报告与年龄较大、男性以及受教育程度较低有关。与更高歧视相关的其他因素包括对生活、自尊、外貌和生活心理质量的较低满意度，以及更高水平的焦虑和抑郁。社会支持部分中介了歧视与心理健康结果之间的关系。当前研究表明，歧视经历会持续到成年期，这证实了确保患者在心理社会服务以及自身社会支持网络中都能得到良好支持的重要性。
