Roberts R M, Mathias J L
School of Psychology, University of Adelaide North Tce., Adelaide, South Australia, 5005 Australia.
Cleft Palate Craniofac J. 2012 May;49(3):276-85. doi: 10.1597/10-143. Epub 2011 May 2.
To examine the psychosocial functioning of adults with congenital craniofacial conditions relative to normative data.
Single sample cross-sectional design.
The Australian Craniofacial Unit, Women's and Children's Hospital, Adelaide, which is one of the main craniofacial treatment centers in Australia.
Adults (N = 93) with congenital craniofacial conditions (excluding cleft lip/palate) who were treated in the Australian Craniofacial Unit.
All participants completed self-report scales assessing health-related quality of life (SF-36); life satisfaction, anxiety, and depression (HADS); self-esteem (Rosenberg); appearance-related concerns; perceived social support; and social anxiety.
Overall, participants were very similar in psychosocial function to the general population. However, adults with craniofacial conditions were less likely to be married and have children (females), were more likely to be receiving a disability pension, and reported more appearance-related concerns and less social support from friends. They also reported more limitations in both their social activities, due to physical or emotional problems, and usual role activities, because of emotional problems, as well as poorer mental health.
These results give cause to be very positive about the long-term outcomes of children who are undergoing treatment for craniofacial conditions, while also identifying specific areas that interventions could target.
相对于标准数据，研究患有先天性颅面部疾病的成年人的心理社会功能。
单样本横断面设计。
澳大利亚阿德莱德妇女儿童医院颅面科，该医院是澳大利亚主要的颅面治疗中心之一。
在澳大利亚颅面科接受治疗的患有先天性颅面部疾病（不包括唇腭裂）的成年人（N = 93）。
所有参与者均完成了自我报告量表，以评估与健康相关的生活质量（SF - 36）；生活满意度、焦虑和抑郁（医院焦虑抑郁量表）；自尊（罗森伯格自尊量表）；外貌相关担忧；感知到的社会支持；以及社交焦虑。
总体而言，参与者在心理社会功能方面与一般人群非常相似。然而，患有颅面部疾病的成年人结婚和生育（女性）的可能性较小，更有可能领取残疾抚恤金，报告的外貌相关担忧更多，从朋友那里获得的社会支持更少。他们还报告说，由于身体或情感问题，他们在社交活动方面受到更多限制，并且由于情感问题，在日常角色活动方面也受到更多限制，心理健康状况也较差。
这些结果使人们对正在接受颅面部疾病治疗的儿童的长期预后非常乐观，同时也确定了干预措施可以针对的具体领域。
