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手部骨关节炎患者日常生活中活动与参与的意义。

The meaning of activity and participation in everyday life when living with hand osteoarthritis.

作者信息

Bromann Bukhave Elise, la Cour Karen, Huniche Lotte

机构信息

University of Southern Denmark, Faculty of Health Sciences, Institute of Public Health, Research Unit of Man, Health & Society , Odense , Denmark.

出版信息

Scand J Occup Ther. 2014 Jan;21(1):24-30. doi: 10.3109/11038128.2013.857428. Epub 2013 Nov 29.

Abstract

OBJECTIVE

The aim of this paper is, first, to advance the understanding of participation and its relationship to activity; second, to add to discussions or understandings of the ICF by contributing an empirically derived understanding of participation and its relationship to activity connected to the conduct of everyday life in people with hand osteoarthritis (hand OA).

METHODS

Semi-structured interviews were carried out with 31 men and women living with hand OA because existing research on this group and the challenges they encounter in their everyday life is sparse. The analytical process was inspired by Interpretive Phenomenological Analysis and informed by critical psychology and social practice theory as interpretive frameworks.

RESULTS

Our empirical findings indicate that persons with hand OA experience participation restrictions in their everyday lives and activity limitations as aspects of participation. This indicates that activity and participation are experienced as interrelated across social contexts.

CONCLUSIONS

Participation in everyday life seems complex: what to participate in, how to participate and with whom seem of importance for subjective meaning-making. Implications are discussed in relation to methodology, the empirical findings, and clinical practice.

摘要

目的

本文的目的,其一,是增进对参与及其与活动关系的理解;其二,通过提供基于实证得出的对参与及其与手部骨关节炎(手OA)患者日常生活行为中活动关系的理解,补充对国际功能、残疾和健康分类(ICF)的讨论或理解。

方法

对31名患有手OA的男性和女性进行了半结构化访谈,因为针对该群体及其在日常生活中遇到的挑战的现有研究较少。分析过程受到解释现象学分析的启发,并以批判心理学和社会实践理论作为解释框架。

结果

我们的实证研究结果表明,手OA患者在日常生活中经历参与限制,且活动受限是参与的一个方面。这表明活动和参与在不同社会背景下被体验为相互关联的。

结论

参与日常生活似乎很复杂:参与什么、如何参与以及与谁参与,对于主观意义的形成似乎很重要。从方法、实证研究结果和临床实践方面对相关影响进行了讨论。

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