Bukhave Elise Bromann, Huniche Lotte
Faculty of Health Sciences, Research Unit of Man, Health & Society, Institute of Public Health, University of Southern Denmark , Odense , Denmark and.
Disabil Rehabil. 2014;36(19):1636-43. doi: 10.3109/09638288.2013.863390. Epub 2013 Dec 6.
To explore first-person perspectives on activities and participation in everyday life among people with hand osteoarthritis (OA).
Semi-structured interviews were carried out with 5 men and 26 women of different ages living with hand OA. Supplemental data were collected via photo-interviews of two of the men and nine of the women. The analytical process was inspired by the interpretive phenomenological analysis and informed by the interpretive frameworks of critical psychology and social practice theory.
Empirical findings indicate that persons with hand OA experience activity problems and participation limitations in the conduct of everyday life. Activity problems were related to self-care, paid work, as well as leisure activities. The participants also reported employing different strategies attempting to overcome the challenges of their everyday lives in order to keep actively performing valued activities. They reported environmental support of utmost importance for these attempts. Social participation in networks was also reported to be affected by the participants' activity problems.
Arranging everyday life is complex and is carried out in structures of social practice. A supportive physical and social environment facilitates participation. The findings highlight the importance of paying attention to individual needs in rehabilitation processes.
探讨手部骨关节炎（OA）患者对日常生活活动及参与情况的第一人称视角。
对5名男性和26名不同年龄段的手部OA患者进行了半结构化访谈。通过对其中2名男性和9名女性的照片访谈收集补充数据。分析过程受解释现象学分析启发，并以批判心理学和社会实践理论的解释框架为依据。
实证研究结果表明，手部OA患者在日常生活行为中存在活动问题和参与限制。活动问题与自我护理、有偿工作以及休闲活动有关。参与者还报告称采用了不同策略来试图克服日常生活中的挑战，以便继续积极参与有价值的活动。他们表示环境支持对这些尝试至关重要。据报告，社交网络中的社会参与也受到参与者活动问题的影响。
安排日常生活很复杂，且是在社会实践结构中进行的。支持性的物理和社会环境有助于参与。研究结果凸显了在康复过程中关注个体需求的重要性。
