Roick J, Keszte J, Danker H, Meister E F, Vogel H J, Jenzewski E-M, Horn I-S, Singer S
Abteilung für medizinische Psychologie und medizinische Soziologie, Universität Leipzig, Leipzig.
Klinik und Poliklinik für Psychosomatische Medizin und Psychotherapie, Universität Leipzig, Leipzig.
Laryngorhinootologie. 2014 May;93(5):321-6. doi: 10.1055/s-0033-1358715. Epub 2013 Dec 10.
Social networks and social participation generally have positive effects on health. Yet, little is known about how patients after total laryngectomy (TLE) are integrated into the society. Aim of this study was to investigate how patients are socially integrated after a TLE and if social integration is associated with certain areas of quality of life.
In a longitudinal multi-centred study 161 laryngectomees were interviewed 1 year after the total laryngectomy. Social integration was measured on the basis of an index formed by the questionnaire "Psychosocial Adjustment after Laryngectomy" and questions about social support. To assess quality of life, we used the questionnaire from the European Organisation for Research and Treatment of Cancer EORTC QLQ-C30.
58% of all patients are well integrated 1 year after surgery. Well integrated persons have less problems in different components of quality of life. They report higher levels of social (OR 4.07; CI: 1.96-8.47) and role functioning (OR 3.59; CI: 1.61-8.02). Successful social integration is also associated with higher emotional well-being (OR 8.57; CI: 3.59-20.46).
There is evidence that 1 year after TLE only about half of the patients feel socially integrated. Because of the negative association of poor social integration with social, emotional and role functioning, patients should be supported in their attempts to take actively part in social life.
社交网络和社会参与通常对健康有积极影响。然而，对于全喉切除术后（TLE）患者如何融入社会知之甚少。本研究的目的是调查全喉切除术后患者如何在社会中融入，以及社会融入是否与生活质量的某些方面相关。
在一项纵向多中心研究中，对161例全喉切除患者在全喉切除术后1年进行了访谈。社会融入是根据由“喉切除术后心理社会调整”问卷和关于社会支持的问题所形成的指数来衡量的。为了评估生活质量，我们使用了欧洲癌症研究与治疗组织（EORTC）QLQ-C30问卷。
所有患者中有58%在术后1年融入良好。融入良好的人在生活质量的不同方面问题较少。他们报告的社会功能（比值比[OR]4.07；可信区间[CI]：1.96 - 8.47）和角色功能（OR 3.59；CI：1.61 - 8.02）水平更高。成功的社会融入也与更高的情绪幸福感相关（OR 8.57；CI：3.59 - 20.46）。
有证据表明，全喉切除术后1年只有约一半的患者感到社会融入。由于社会融入不良与社会、情感和角色功能之间存在负相关，应支持患者积极参与社会生活的努力。
